Health Canada Recall: JAMP-Pregabalin 50 mg
#Canada #Spoonies #NervePain #Fibromyalgia
https://www.ctvnews.ca/health/article/potentially-fatal-health-risks-jamp-pregabalin-recalled-for-dosage-issue/
"'Twirl With Me, Mama!' by Melissa Beardall & Rebecca Nichols is a moving children’s book that shines a compassionate light on families living with #chronicillness ."
https://hazymaybooks.com/about-the-book/
See next post for more information on this book
@chronicillness
@spoonies #parenting #chroniclife #ChronicPain #Spoonielife
#hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots
1/
Recap of professionally-facilitated support group "Surviving Invalidating Relationships & Experiences"
https://batemanhornecenter.org/wp-content/uploads/2025/03/20250311-Support-Group-Recap.pdf
"by becoming sick with a #chronicillness we become a minority...based on the prevalence rate of these conditions"
#Spoonies @longcovid
#LongCovid @mecfs
#MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots @chronicillness
@spoonies
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
6/
“Preparing Information for your Doctor Appointment - Template”
https://emerge.org.au/wp-content/uploads/2023/12/Preparing-for-your-Drs-appointment-template.pdf
#chronicallyill #longtermillness #mecfs #spoonies
@mecfs @chronicillness @spoonies @fibromyalgia #fibromyalgia #pots @pots #chronicillness
People with Chronic Migraine should be exempt from ice cream headaches, I have decided.
Oooo! You guys, today I have:
•Chatted online with friends.
•Gone for a walk in the woods.
•Sat outside and stretched.
•Napped in a sunbeam.
•Had a shower.
That's gotta be a self care BINGO. 
If I could do this for 100 days or so, I think I could heal my poor body and psyche quite a bit.
I think I have finally shifted from crisis mode to recover mode. Things are still a mess but there's room to heal in there too finally.
Tagging all the @lonelinesscorps crew:
This is validating af, if you are ill and want to share with friends to help them understand, or help yourself understand why you have to make the choices you do.
If you're not ill, can you plan low key activities that are easier for #spoonies to engage in and expand your own social sphere?
https://disabled.social/@tomkindlon/114400091881032856
Ok this is fekkin brilliant. A lil site that runs you through a self care check flow chart. Super helpful when you feel like hell and can't think straight.
https://philome.la/jace_harr/you-feel-like-shit-an-interactive-self-care-guide/play/index.html
#spoonies #brainFog #ADHD #auADHD #longCovid #ADD #actuallyAutistic #chronicIllness #mentalHealth #selfCare
@RussSharek @secretsloth @catnip
Yes yes! To all of this.
@lonelinesscorps is a great tool to reach out to start a chat, about whatever - deep or silly. I use it a lot to see if anybody wants to watch a movie with me. Good place to connect, lots of #spoonies there.
There's a #joinIn tag and community you could check out too.
I have also had good luck building chat groups on Signal if you want something a lil more intimate. Having a group of spoonies to touch base with every day helps a lot.
Blogpost giving some tips on how to maximise the usefulness of appointments with doctors.
https://www.carermentor.com/p/how-to-close-patient-doctor-disconnects
#DoctorPatientRelationship @chronicillness
@spoonies
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
It's such a strange feeling to be grateful for one kind of pain because at least it isn't a different kind of pain.
I've had chronic illnesses for most of my life but I don't know if I'll ever entirely get used to this.
OMG you guys!
I just realized, a collective shared support spoonie household is called a spooniecule.
#spoonieTown #turtleBower #spooniecule #spoonies
7/
From full paper:
“The fluctuations of chronic illness meant that self- and social-identities were continuously in flux, with participants feeling caught between communities of illness/disability and wellness.”
#chronicillness #spoonies
@chronicillness @spoonies @disability @longcovid @fibromyalgia @pots @dysautonomia @mecfs
5/
"Theme 3: Loneliness as being a spectator rather than a player"
From:
"The Link Between Loneliness and Chronic Illness: A recent study explores the intersection between loneliness and chronic illness."
https://www.psychologytoday.com/ie/blog/chronically-me/202504/the-link-between-loneliness-and-chronic-illness
#chroniclife #Spoonies
@chronicillness @spoonies @disability @longcovid @fibromyalgia @pots @dysautonomia @mecfs
I had a really fruitful mtg yesterday with an OT from the brain injury org my doc referred me to re the long term brain injury covid left me.
Lots of discussion around executive function limitations and my inability to manage interpersonal stuff in real time.
Ymmv, but in case you didn't know you could ask for that, you can ask for that.
Go on, shake that tree, help might fall out.
#longCovid #spoonies #brainFog #brainInjury
#Spoonies: is it possible to sit with your legs crossed ("criss cross applesauce") on a rollator?
My OT has never heard that question before and said we can test the biggest rollator she can find next time I see her, but she doubts it.
I use a cane now (have for 10 years) and want the rollator so I can sit when my POTS flares.
Thank you for your input and expertise, friends! 
2/
“The study authors underscore that we wrongly tend to see loneliness as an individual problem that can be corrected solely through individual behavioral changes. Rather, they assert that loneliness occurs due to intertwining individual and societal factors.”
#chronicillness #spoonies
@chronicillness @spoonies @disability @longcovid @fibromyalgia @pots @dysautonomia @mecfs
I found this blog post interesting.
The research found 3 themes relating to loneliness in chronic illness.
It then mentions a writing exercise one can do to analyse these in your own situation.
#chronicillness #chroniclife #Spoonielife #hiddenillness #invisibleillness #Spoonies @chronicillness
@spoonies
@disability
@longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots #dysautonomia @dysautonomia @mecfs
#MEcfs #CFS #PwME
1/
![1st panel: chronic illness or pain is a bucket of sh*t! [one guy looking at other guy who is crying]
2nd panel: but meeting other spoonies only helps. [1st guy hugging 2nd guy and he stopped crying]](https://files.mastodon.social/media_attachments/files/114/353/671/172/415/240/original/048408d77de35c23.png "1st panel: chronic illness or pain is a bucket of sh*t! [one guy looking at other guy who is crying]
2nd panel: but meeting other spoonies only helps. [1st guy hugging 2nd guy and he stopped crying]")