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MEActNOWLongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO <a href="https://mastodon.social/tags/IACC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#IACC</a> <a href="https://mastodon.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> <a href="https://mastodon.social/tags/LongCOVIDResearch" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVIDResearch</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://mastodon.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCAS</a> <a href="https://mastodon.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://mastodon.social/tags/COVIDisNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDisNotOver</a> <a href="https://mastodon.social/tags/rthm_health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#rthm_health</a> <a href="https://mastodon.social/tags/LongCOVIDTreatments" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVIDTreatments</a> <a href="https://mastodon.social/tags/ChronicIllnessCare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnessCare</a><a href="https://youtu.be/3F9dISwGhAU?feature=shared" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://youtu.be/3F9dISwGhAU?feature=shared</a>

Bass #AlleBurgers #EcoHumanist<a href="https://mstdn.social/@VivienneMatthiesBoon" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@VivienneMatthiesBoon</a> on X wrote:<a href="https://mastodon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>, <a href="https://mastodon.nl/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> and <a href="https://mastodon.nl/tags/PAIS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PAIS</a> are medical and ethical emergencies. Though many people fail to recognise this as such. On the ethical issues, our website with the video recordings of the talks held at the <a href="https://mastodon.nl/tags/postviralethics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postviralethics</a> conference is now online!! 👇<a href="https://www.ru.nl/en/about-us/news/postviral-ethics-rcps-pcnn" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.ru.nl/en/about-us/news/postviral-ethics-rcps-pcnn</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Aurora"Ihr Werk wirft Fragen auf, die sich Generationen chronisch kranker und behinderter Künstlerinnen gestellt haben: Wer darf sichtbar sein? Wer gilt als arbeitsfähig, kreativ, gesellschaftlich relevant? Und wer verschwindet in der Horizontale des Sofas, der Dunkelheit des Schlafzimmers?"Jana Petersen im Monopol Magazin über die Schweizer Künstlerin Gritli Faulhaber, die <a href="https://zirk.us/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> hat. Im Artikel werden auch ihre Essener Ausstellung und <a href="https://zirk.us/tags/CripTime" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CripTime</a> erwähnt.Link: <a href="https://www.monopol-magazin.de/gritli-faulhaber-mecfs-die-punkte-einer-neuen-lebensordnung" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.monopol-magazin.de/gritli-faulhaber-mecfs-die-punkte-einer-neuen-lebensordnung</a><a href="https://zirk.us/tags/Art" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Art</a> <a href="https://zirk.us/tags/Kunst" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Kunst</a>

Tom Kindlon3/Myth versus factThe Myalgic Encephalomyelitis EditionFrom: <a href="https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Irish ME/CFS Association10/ Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Page 5 of 8) <a href="https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0</a>One of the fact sheets we sent to 3612 Irish GPs recently<a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Tom KindlonUK: ME/CFS & Long COVID Stocktake documents (obtained under FOI from NHS England)<a href="https://1drv.ms/b/s!AoHfldspRkWU14RVP0Bvu9OTaHTy4A?e=JESZnt" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://1drv.ms/b/s!AoHfldspRkWU14RVP0Bvu9OTaHTy4A?e=JESZnt</a> <a href="https://1drv.ms/b/s!AoHfldspRkWU14RUdGXkfB1t1oJNdA?e=wBtfML" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://1drv.ms/b/s!AoHfldspRkWU14RUdGXkfB1t1oJNdA?e=wBtfML</a><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid</a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#postcovid19</a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covidlonghaulers</a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostCovidSyndrome</a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhaulers</a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVIDBrain</a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NeuroPASC</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a>

Tom Kindlon2/ 1. Myth: ME is a mental health condition.Fact: ME is a biological illness that disrupts the metabolism and impairs the brain, immune system and autonomic nervous system.From: <a href="https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

bazkie, lanparty callgirlMijn beste vriendin heeft ME/CFS. Ik kreeg net dit fijne bericht van haar.Ik wou het hier graag delen (met haar toestemming) voor zichtbaarheid, omdat severe ME/CFS (en long covid, wat gerelateerd is) erg onderbelicht is. De mensen die hier aan lijden zie je niet, want die liggen weggestopt in hun verduisterde kamers.Ben erg dankbaar dat het de laatste maanden wat beter gaat met mijn bestie 🙏🏼Ben ook super trots op haar dat ze dit mentaal zo knap doorstaat.. 💪🏼 <a href="https://beige.party/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://beige.party/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>

Tom Kindlon“Trial By Error: New Zealand GP Group Disavows Lightning Process Endorsement; BBC’s Con or Cure Takes Skeptical Look at LP [Lightning Process]” (16 April 2025) By David Tuller, DrPH<a href="https://virology.ws/2025/04/16/trial-by-error-new-zealand-gp-group-disavows-lightning-process-endorsement-bbcs-con-or-cure-takes-skeptical-look-at-lp/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://virology.ws/2025/04/16/trial-by-error-new-zealand-gp-group-disavows-lightning-process-endorsement-bbcs-con-or-cure-takes-skeptical-look-at-lp/</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a>

Tom Kindlon🧵 Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) <a href="https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://worldmealliance.org/2025/04/world-me-day-2025-six-myths-and-facts-everyone-should-know-about-myalgic-encephalomyelitis-me/</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> 1/

Tom KindlonDissecting the genetic complexity of myalgic encephalomyelitis/chronic fatigue syndrome via deep learning-powered genome analysis (N = 464 ME/CFS patients, N = 611 negative controls)Free: <a href="https://www.medrxiv.org/content/10.1101/2025.04.15.25325899v1" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.medrxiv.org/content/10.1101/2025.04.15.25325899v1</a><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a>

Tom KindlonI found this blog post interesting.The research found 3 themes relating to loneliness in chronic illness.It then mentions a writing exercise one can do to analyse these in your own situation.<a href="https://www.psychologytoday.com/ie/blog/chronically-me/202504/the-link-between-loneliness-and-chronic-illness" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.psychologytoday.com/ie/blog/chronically-me/202504/the-link-between-loneliness-and-chronic-illness</a><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@pots</a> <a href="https://disabled.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dysautonomia</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dysautonomia</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a>1/

Irish ME/CFS Association9/ Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Page 4 of 8) <a href="https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0</a>One of the fact sheets we sent to 3612 Irish GPs recently<a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Wolfgang Hagen<a href="https://troet.cafe/@Willy_Wuff" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Willy_Wuff</a> <a href="https://mastodon.social/@Moire" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@Moire</a> Akutfälle ja.Aber laut dem Referenzzentrum für <a href="https://wien.rocks/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> und <a href="https://wien.rocks/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> an der MedUniWien sind diese Krankheiten nach der letzten, relativ milden Welle im Herbst deutlich angestiegen.

Andrew GiffordFrom ThereForME: "If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you."<a href="https://docs.google.com/forms/d/e/1FAIpQLSelDC00Dul6_PiiBEZrAPHgG0HFdp8x9YtpBw9LwFGmIOkhJQ/viewform" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://docs.google.com/forms/d/e/1FAIpQLSelDC00Dul6_PiiBEZrAPHgG0HFdp8x9YtpBw9LwFGmIOkhJQ/viewform</a><a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://mastodon.social/tags/ThereForME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ThereForME</a> <a href="https://mastodon.social/tags/Welfare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Welfare</a> <a href="https://mastodon.social/tags/PIP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PIP</a> <a href="https://mastodon.social/tags/DWP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DWP</a> <a href="https://mastodon.social/tags/DisabilityBenefits" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabilityBenefits</a>

Dr Ro Smith<a href="https://wandering.shop/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://wandering.shop/tags/Meditation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Meditation</a> hey, so, I have been loving Insight Timer as a free app that has loads of yoga nidra and shavayatra meditations, but they have started really forcing the idea of setting an 'intention', and now it's dominating the home screen as well as giving me frequent prompts to 'reflect'.I strongly don't like the intention aspect and this is completely putting me off. Can anyone suggest a *free* app that does something similar (hosts guided meditations and sleep music)?Not Calm.

Anderbergskan📣 Online demonstration with friends outside the 🇸🇪,🇨🇦,🇬🇧 + 🇩🇪 parliaments for <a class="hashtag" href="https://bsky.app/search?q=%23cleanair" rel="nofollow noopener noreferrer" target="_blank">#cleanair</a> and care + biomedical research for <a class="hashtag" href="https://bsky.app/search?q=%23PAIS" rel="nofollow noopener noreferrer" target="_blank">#PAIS</a> + <a class="hashtag" href="https://bsky.app/search?q=%23MEcfs" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a>! The unscientific psychosomatization of PAIS and ME/cfs destroys people every day! 👇 <a class="hashtag" href="https://bsky.app/search?q=%23CallForPublicHealthAction" rel="nofollow noopener noreferrer" target="_blank">#CallForPublicHealthAction</a> <a href="https://bsky.app/profile/nervbueddel.bsky.social/post/3lmralznlok2g" rel="nofollow noopener noreferrer" target="_blank">bsky.app/profile/nerv...</a> RE: <a href="https://bsky.app/profile/did:plc:4vh2gdgwoxrzar5bmwxwtvpz/post/3lmvre33eis2s" rel="nofollow noopener noreferrer" target="_blank">https://bsky.app/profile/did:plc:4vh2gdgwoxrzar5bmwxwtvpz/post/3lmvre33eis2s</a>

Anti. 🐘Research Update:· Three studies highlight the long-term effects of <a href="https://chaos.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> on children’s brains, kidneys, and cardiovascular systems · Electronic health records of 6.5 million people showed notable differences and similarities between <a href="https://chaos.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> and <a href="https://chaos.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> myalgic encephalomyelitis (ME) · NIH study assesses if the tracer 11C-PS13 — a molecule injected into the body before an imaging scan — can help identify inflammation in people with neurological Long COVID<a href="https://thesicktimes.org/2025/04/15/research-updates-april-15/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://thesicktimes.org/2025/04/15/research-updates-april-15/</a>

Tom KindlonHere is a better picture: <a href="https://www.picture-alliance.com/search/images(popup:image/388749320)?searchTerm=fc%20st%20pauli&page=7&size=small&layout=mosaic" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.picture-alliance.com/search/images(popup:image/388749320)?searchTerm=fc%20st%20pauli&page=7&size=small&layout=mosaic</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs_de" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs_de</a>

Irish ME/CFS Association8/ Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Page 3 of 8) <a href="https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0</a>One of the fact sheets we sent to 3612 Irish GPs recently<a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

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