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#DisabilityLit

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Some books you read. Others read you back. 📖✨

Returning to Atwood's Cat's Eye (again).

Every re-read reveals new layers about how institutions fail us, how #trauma shapes #perception, and how #art becomes #survival.

As someone who's lived through foster care, medical gaslighting, and academic #ableism, Elaine's sharp observations of power and complicity hit differently each time.

Literature as a mirror and a map.

📗 "The Covid Safety Handbook: Staying Safe In An Unsafe World" by Violet Blue

Early happy almost release day to the Covid Safety Handbook! I was a kickstarter backer for this title, so of course I'll be at least a little bit biased. But I'll try to be honest and clear about what you can expect from this handbook, and then you can go on your merry way and preorder it now or purchase it from November 26 (2024) onwards.

If you think covid is gone or no big deal, this book is for you. If you have any doubt or questions about covid, or wonder why some people still mask or why you keep getting sick, this book is even more for you.

The handbook goes into the basics of the spread of an airborne disease and what can be done to limit its spread. It discusses mask use, ventilation, filtration, vaccination, and more. It shows how these things can be put into practice, along with tips on how to travel, how to talk to your family, how to resist peer pressure or gaslighting and handle hard emotions, etc. It shines a light on Long Covid as one of the most important possible consequences of infection. It takes the topic seriously, but is written is a very casual way as to make it as accessible as possible for any reader.

If you're a covid cautious veteran with a drawer full of respirators and a CO2 meter standing near your Corsi Rosenthal box right now, you'll probably not learn anything new from this book (but read it anyway, so you know what kind of material is out there to recommend!). Maybe you'll be a little annoyed that Blue motivates the reader to do whatever it is that they can do, instead of immediately going all the way to being a hardliner (I sometimes was). But honestly, I think someone's got to take this approach. Many people want to take small steps and are easily scared off by tough talk or shaming. Maybe this book is the gentle introduction someone needs to get going and research by themselves even more.

What I appreciated a lot was the author's acknowledgement of the disability movement, their knowledge and the way they've been uniquely targeted by the ableism of the pandemic response. This never overshadowed the general message that covid is bad news for everyone, but is still important to understand in my opinion.

Like almost every English-language covid information source, this is mostly US-centric. You won't easily get the brands mentioned on most other continents. There is some level of assumption that the US set the tone for how we handle covid and every other country simply followed. It's probably a hard thing to avoid if most accessible, quality English information sources reference each other and expand, but don't often interact or exchange with other languages and countries. I think anyone in a non-native English speaking country is used to this and can adapt. It really isn't that bad, and it doesn't devalue the text or its message.

Lastly, if there's ever a second print or a revision of some sorts, I'd love to see these additions:

- Mentioning FFP3 masks and their safety grade (since FFP2 does get explained)

- A chapter about mask bans and how to deal with them or prepare for them, maybe with tips and mask alternatives (such as the BPR by Sam Hall)

- There's lots of tips for relatively rare situations, such as going on a plane or staying in a hotel. I'd like to see a little more attention for how to keep masking in difficult everyday situations such as job interviews, hostile workplaces, when living with people who refuse to take any precautions, etc.

Tl;dr: Please have an open mind and look into this book. It's a good resource. You could learn something valuable about protecting yourself and others. At the very least you'll support an indie publication and an author who's fighting hard to keep us safe from early death and disease.

#AmReading #NonFiction #covid #covid19 #COVIDisAirborne #CovidIsNotOver #WearAMask #MaskUp #LongCovid #books #bookstodon #DisabilityLit #PlagueBook

@pandemicine
@maskup

📘 "Revenge of the Scapegoat" by Caren Beilin

I'm not sure how to talk about this book, because I feel like I won't do it any justice. It wasn't always pleasant to read, it was confusing and strange, frustrating and boring at times, but amusing and interesting nevertheless. It's kind of funny, but only in the way that life is so absurd and tragic that you can't help but laugh.

The main character is the scapegoat of her family, and the book is about her re-receiving letters from her abusive father. It's about both escapism and confrontation. If you're someone who avoids contact with certain family members too, the stress of the protagonist's situation really starts to creep up on you.

There's also a slight focus on the character's rheumatoid arthritis and the chronic pain that comes with it. The way she copes with this, or rather, the way she frames it in daily life is certainly the goofiest part of this whole book. That and the nazi cows.

My favorite parts were the transcribed conversations with a character/person called Ray. Sad, but comforting.

📗 "Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders" edited by Diana Jovin

This is a collection of scientific research written by a variety of authors, readable for the general public. It's not just about hypermobility itself, but also about many others symptoms and illnesses that are frequently present with this syndrome/disorder.

It's interesting to read cover to cover, but I think it'll mostly serve well as a reference book. Or as a guide to use to look into symptoms one by one if you feel too overwhelmed to tackle everything at once.

Especially the chapters about physical therapy were useful for me at the moment. I'm keeping this (e)book around, because I'm sure I'll use it every now and then to look up certain information.

📗 "Some of Us Just Fall: On Nature and Not Getting Better" by Polly Atkin

The right book at the right time. I injured myself last week and have had a difficult time so far, but this book is the best companion I could've wished for.

Polly Atkin talks about her life with hEDS and hemochromatosis. It's about the comforts of nature, but also about how it's not a magical cure for illness and disability. It's about ableism, horrible hospital visits and making it through every symptom, injury and bad day. It's about being dismissed and reaching diagnosis -about everything making and not making sense.

This memoir was incredibly relatable. I read it slowly on purpose so I could spend more days with it. One of the most surprising things was that covid was mentioned, along with some of the eugenic attitudes that we've had to face. I looked up the author on social media, and saw that she still promotes precautions and warns about long covid. These ongoing pandemic years have been so brutal and isolating (covid cautious people are rare even among published disabled authors). Spotting a kindred soul comes with great relief.

I'm obviously highly recommending this book, especially if you love nature writing, but extra especially if you're stuck inside with a flare-up or an injury, living in crip time, focused on taking your medications, doing your exercises, trying to get outdoors.

📗 "Disability in the Time of Pandemic" edited by Allison C. Carey, Sara E. Green & Laura Mauldin

This is a collection of 11 studies by a variety of researchers/authors.

After reading lots of biomedical studies about #covid19 in the past few years, it was nice to read some from the social sciences. Especially nice: mostly there is an acknowledgement of how hard the disabled have been hit so far by the pandemic, and the ongoing nature of the pandemic is understood. I say 'mostly' though, because there's still some disappointing 'post-pandemic' stuff going on in a few of them.

Some articles were more interesting and in-depth than others. Only four different countries were addressed. There is lots about lockdowns, social distancing, lack of care, and inaccessibility because of covid mandates, but not a lot about inaccessibility due to the virus itself or discontinued mandates. The studies certainly are valuable, and I'm grateful that they're being done at all, but I wouldn't present this collection as the be-all and end-all on this topic.

The irony of this book is that without academic access or piracy, it's quite inaccessible for the people it's about due to its ridiculously high price. And as mentioned (many times) in the text itself, many people with disabilities are unemployed and/or living below the poverty line. Got to love academic publishing and its prices /s.

Ohhh I just read @MarissaLingen 's new short story & it made me cry in the best way. For everyone who's ever been told they were "just stressed" when they were actually really sick...trust me. This really is for us: sundaymorningtransport.com/p/e

(It's subscribers-only but you can read it with a free 7-day trial!)

The Sunday Morning TransportExiled to GravityBy The Sunday Morning Transport