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#hypermobility

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Inoru

Hey. Help us pay for my new wheelchair? I'm desperately hoping the issues with my current chair are that it's old and battered and possibly needs more in repairs than would be worth it (it's better than NOT having one, don't get me wrong...). But $1,100 (rounded slightly up) is a dear price even if cheaper than we'd ever get anything custom.

We're hoping to pay it off in chunks, since we used a credit card, but. The assurance of *having* the money to pay it off would be awesome - and y'all can say you helped buy my chair! Win/win!

Current goal is at 0/$100

(Unless that's changed literally while I've been typing 🤣)

My cashapp is $Inoru, spouse's CashApp is $ceahhettan and his
Venmo is @/californiummm; ask them for paypal/zelle. Comment wheelchair or a Blue wheelchair emoji with specifically-for-this donations! Any amount helps and I/we appreciate!

<*wiggles in New Wheelchair excitement*>

#crowdfund #crowdfunding #transcrowdfund #transcrowdfunding #disabledcrowdfund #disabledcrowdfunding #deafcrowdfund #deafcrowdfunding #helpfolkslive #HelpFolksLive2025 #mutualaid #MutualAidRequest #moneyhelp #ambulatorywheelchairuser #hEDS #hypermobility #hypermobileEhlersDanlosSyndrome #wheelchairuser #powerchair #wheelchaircrowdfunding #powerchaircrowdfunding #IsThisEnoughHashtags #hashtag

via @camilla

kolektiva.social/@camilla/1137

kolektiva.socialcamilla (@camilla@kolektiva.social)hi everyone! we have a new #MutualAid #MutualAidNeeded #MutualAidRequest #MastodonForHarris #Mastodon4Harris #HelpFolksLive #HelpFolksLive2025. we just replaced @inoru_no_hoshi@blorbo.social's power wheelchair with a new one that'll be here Saturday, for the fun sum of $1093.95 on a credit card, with monthly payments of just under $100. y'all, we bought this on faith and a prayer (and a reserve that will help but can't wholly cover the payments and help us not be crushed by poverty at the same time) because their old power wheelchair is unsafe now. it can't be driven across a curb cut without them ending up in the street, much more severely than my chair does. the motors struggle a good bit of the time. part of them having independence is the power wheelchair, so I'm asking to help us with the price of agency and independence as disabled individuals. as y'all probably know, we're both disabled and neither of us work, and we mostly survive off of the good will and kindness of our close friends and random strangers. goal $0/100 put wheelchair in the comments. CashApp: $ ceahhettan Venmo: @ californiummm ask for PayPal/Zelle.
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Little Bear Crochets

Honored to have my crochet patterns featured in the Zebra Club's holiday gift guide 🦓

jeanniedibon.com/hypermobility

Crocheting with hypermobility has been tough. Over the years I've had to limit my time spent crocheting, invest in some better hooks & braces, and take breaks from it every now and then due to injuries.

I always come back to it, because it remains a calming activity for me in its own way. With enough care and caution, I'm able to keep doing it. ☺️

Jeannie Di Bon - Specialist in movement therapy for hypermobility and EDS · Hypermobility Holiday Gift Guide 2024 - Jeannie Di BonWe’ve compiled this comprehensive list of holiday gift ideas for the hypermobile people in your life curated by members of The Zebra Club Community.
#crochet#amigurumi#hypermobility
Public
Reading Recluse

📗 "Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders" edited by Diana Jovin

This is a collection of scientific research written by a variety of authors, readable for the general public. It's not just about hypermobility itself, but also about many others symptoms and illnesses that are frequently present with this syndrome/disorder.

It's interesting to read cover to cover, but I think it'll mostly serve well as a reference book. Or as a guide to use to look into symptoms one by one if you feel too overwhelmed to tackle everything at once.

Especially the chapters about physical therapy were useful for me at the moment. I'm keeping this (e)book around, because I'm sure I'll use it every now and then to look up certain information.

Cover of 'disjointed'. It's a picture. It's a bit abstract, but it looks like volcanic rock that's cracked vertically in the middle of the cover. Magma is visible deep within the crack. The title is in orange on a black bar on the top half of the cover.
#AmReading#DisabilityLit#hypermobility
Public
Belle (she/her)

A slightly more bite-sized version of the studies I just shared.

This is FUCKING HUGE.

First of all, it means all of us who never got a full hEDS diagnosis (or who got downgraded when the diagnostic criteria changed) probably have the exact same genetic condition.

Secondly, there’s eventually going to be able to be a TEST for this??? No more “it’s all in your head” or “it might be anxiety”

ehlers-danlos.com/new-research

Screenshot from the article, which reads: Study Overview In this study, researchers examined blood samples from 466 adults, including 94 diagnosed with hEDS and 80 with HSD. The study revealed the presence of a specific 52 kDa fragment of fibronectin in the blood of every individual with hEDS and HSD. This fragment was notably absent in healthy controls, individuals with other types of EDS, and those with various kinds of arthritis. Additionally, a fragment of collagen I was found in all individuals with hEDS and HSD, although this fragment was also present in other conditions. The consistent presence of the 52 kDa fibronectin fragment in individuals with hEDS and HSD suggests a possible common underlying pathophysiology, thus questioning the differentiation between these conditions.
#hypermobility#hEDS#EhlersDanlos
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