The #perimenopause symptoms have officially started. I’ve had #vertigo and a #VestibularMigraine for two days now.

would love to not be made very dizzy and noticably foolish[er] by storms

the preventative I'm on means I haven't puked from pain for almost 6 months (yay) but the milder symptoms are still scary as hell

would not wish temporal global amnesia on my worst enemy (billionaires) #migraine #vestibularmigraine

I had been feeling very unwell today - it's finally dawned on me it's an attack of Vestibular Migraine.
This is something that comes to me rarely, much less often than the Ocular Migraine / Migraine with Aura - but somehow related.

It's all tiredness and anxiety / stress related - except I'm supposed to be relaxing on holiday.

Thankfully it seems to have cleared away (at least for today)

It's been an entire week that I haven't had migraine activity.

Yesterday the migraine was scratching at the edges and I was keeping it at bay with caffeine and benedryl. The tinnitus from the AC is hard to push down, but it hasn't tipped all the way into migraine.

Abortive treatment like that comes with a big rebound migraine after they've run their course for me, i.e. I am chronic and it comes right back. I suck it up because it's worth the relief, if just for one day.

This morning I thought... "ok here comes the rebound. I hear some tickling and heavier tinnitus..." and did my yoga and core stretches and pushed a bit harder in my HIIT sets...

The migraine never showed up. It's not here. The longest span I have ever had of no migraine and then not having it the next day since - and I shit you not - 2019.

The only thing I've changed is the intense exercise. Everything else has stayed the same, but it's like the HIIT is dropping the cortisol <so much> that the other things I'm doing finally feel like a working set of things, so that this past week the bucket is getting completely emptied when I exercise.

Weer, vooral onweer is (en scherpe luchtdrukwisselingen zijn) een dikke migraine trigger. Ook voor #VestibulaireMigraine helaas. O.o

The last few days have been painful. #OccipitalNeuralgia on the right side (always more painful on the right) lasted for 36hrs. Took the usual tramadol, naproxen and diazepam. I think the only thing that really helps are the ice packs.
During the night, the barbed wire (as I call it) snapped, and the pain has eased. Now I'm left with a more regular headache and fatigue. My #Fibromyalgia #MeCfs flares after an ON, and then I get a #VestibularMigraine a day or 2 after.. fun!
#Cats for company

It occurs to me to document this #LongCOVID issue. I keep getting these #Vestibularmigraine level heafaches.

But I experience often immediate relief from putting my oxygen on. I wonder if other people with #LongCOVID are having these terrible headaches.

But can't access the treatment I have from also having #cancer.

If you know my backstory, you know that as I refused to leave the hospital without assistance, I was sent home on oxygen.

A very fascinating thing happened to me today. I got a #migraine. I rarely get them, so I did what I recommend to my patients: look for triggers. The only thing out of the ordinary was that I went to the playground with my 5yo and played on the spinning seat.

I gave myself 100% physiologic #nystagmus--and hours later got a migraine.

#neurology #neurotology #vertigo #vestibular #VestibularMigraine #MedMastodon

1/2

Last week the Neurologist really said bring your pain medication usage down to zero, and it's Day 4 of this Migraine and I am NOT BUILT FOR IT BABES.

But they wanna rule out MOH(Medicine Overuse Headaches )so....here we are, staring pain in the eye and daring it to blink.

Boots being on Deliveroo is truly one of the greatest inventions known to humankind.

Real talk though, it took Lockdown-living for people to understand what people with chronic illness and or disabilities have been yelling about for years…access to medications and pain relief is torturously slow, truncated and woefully inefficient.
Healthify and Scription are working on solving Rx supplies, that's what we need.
#disability #vestibularmigraine #blackFedi