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#UCSF

1 post1 participant0 posts today
Public
Bongolian

Erin Allday: reakthrough multiple sclerosis therapy by #UCSF doctor transforms treatment for millions

"'When biomedical research is perceived to be threatened, great young people can conclude that this just isn’t a secure career,' Hauser said. 'And yet we are entering a new era where these brain diseases are understandable, treatable and down the road even preventable.'"

#gift #multiplesclerosis #health #healthcare
sfchronicle.com/health/article

Public
(((Cindy Weinstein)))

It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.

lnkd.in/g-mgqkkN

#EndAlz
#Caregiving

lnkd.inLinkedInThis link will take you to a page that’s not on LinkedIn
Public
(((Cindy Weinstein)))

It was an honor to be a panelist on #Dementia Stories for Impact: Dementia Life Course and Storytelling, sponsored by the #AlzheimersAssociation and #UCSF. My fellow authors and colleagues talked about the importance of #narrative, #empathy, #brain health, and Dr. Bruce Miller and I talked about our work together on my #memoir, Finding the Right Words: A Story of Literature, Grief, and the Brain. I hope you find this discussion helpful.

lnkd.in/g-mgqkkN

#EndAlz
#Caregiving

lnkd.inLinkedInThis link will take you to a page that’s not on LinkedIn
Public
Winston Chiong

Announcing an upcoming panel on probably the most active controversy in #bioethics that people outside medicine (and many within) haven't heard of, #ta-NRP for #organdonation. (We're facing decisions about this at #UCSF and many other hospitals are also considering their policies.) This is a method for increasing the quantity and quality of organs available for transplantation, but which many critics believe violates the dead donor rule. In ta-NRP circulatory death of the donor is declared, after which perfusion is restored to thoracic and abdominal organs while brain perfusion is (we think) surgically prevented. Ta-NRP is performed in Spain, Italy, the Netherlands, France, and in some centers in the US; is contrary to guidelines in Canada, Australia, and NZ; and has been paused in Belgium and the UK pending further study.

At #Neuroethics2025 in Munich next month we'll host a panel, International Controversies over ta-NRP for Organ Procurement: Brain Perfusion and the Dead Donor Rule, including panelists to share key perspectives from three countries where ta-NRP has been performed, critiquing different conceptions of the role of the brain in circulatory death and how national professional and public norms affect views of this procedure:

  • Karola Kreitmair (Univ. of Wisconsin, US) is a philosopher whose work addresses philosophical arguments regarding ta-NRP and the dead donor rule.
  • Amelia Hessheimer (Hosp. Univ. La Paz, Spain) is a transplant surgeon and co-author of the European Society for Organ Transplantation's consensus statement on NRP.
  • Alex Manara (N. Bristol NHS Trust, UK) is an intensivist and author of an influential early analysis on ta-NRP and the dead donor rule.

neuroethicssociety.org/posts/i #neuroethics

neuroethicssociety.orgInternational Controversies over ta-NRP for Organ Procurement: Brain Perfusion and the Dead Donor RuleNeuroethics 2025Full scheduleRegistration This panel will explore experiences of and concerns about Thoracoabdominal normothermic regional perfusion (ta-NRP) in different cultural and legal contexts. Experts will identify and critique different conceptions of the role of the brain in informing perspectives on the permissibility of ta-NRP, as well as discuss how national professional and public norms around ... International Controversies over ta-NRP for Organ Procurement: Brain Perfusion and the Dead Donor Rule
Public
UC Access Now

Just passing this on...

"Spill the Disabili-Tea: An Introduction to Disability Justice"

"What is disability justice and its relationship to racial justice? What’s the difference between access and inclusion? These and other complex questions will be explored in this virtual Disabili-Tea workshop with Alex Locust, a Black biracial, queer, disability justice educator, activist, and “Glamputee” who celebrates the harmony of his identities to help create the world we all want to see. Armed with bombastic charm, whimsical humor, and a sharp wit, Alex synthesizes his lived and professional experiences to share his knowledge and insights on what it means to adopt a disability justice framework that builds community and empowers individuals with disabilities.This workshop is open to all UCSF learners, staff and faculty.

Registration: tiny.ucsf.edu/b35L4m "

calendar.ucsf.edu/event/spill- #UCSF #UCAccessNow

ZoomWelcome! You are invited to join a meeting: Spill the Disabili-Tea: An Introduction to Disability Justice. After registering, you will receive a confirmation email about joining the meeting.The UCSF Office of Disability Access and Inclusion invites you to join us for a Spill the Disabili-Tea workshop designed to elevate knowledge of disability justice and provide a space to learn about ableism, microaggressions, disability intersectionality, and strategies for being an effective ally. Accessibility: UCSF welcomes everyone, including people with disabilities to our events. To request a reasonable accommodation, please contact Cecile Puretz by emailing Cecile.Puretz@ucsf.edu as soon possible. Guest Speakers: UCSF endeavors to create greater understanding and supports the exchange of diverse ideas. Views and opinions of guest speakers on campus are their own and may not reflect the perspective of the University.
Public
Dr. Marie McNeely

From growing up on a cattle farm in rural Virginia to leading his own research lab at UCSF, Dr. Kyle Cromer shares his career path, including his exciting work using genome editing to introduce new functions into cells for different therapeutic purposes. We hear about how he overcame failed experiments and burnout, as well as some of his latest research successes. Learn more about Kyle's life and science in our latest podcast episode!

peoplebehindthescience.com/dr-

Thank you to Innovative Research for providing support for this episode!

On the left side of the image, there is a headshot photo of Dr. Kyle Cromer. On the right side, the text at the top reads, "Episode 801 featuring Dr. Kyle Cromer". The cover art for our podcast is included below. The text in the image reads, "People Behind the Science with Dr. Marie McNeely."
#UCSF#GeneEditing#genetics
Public
(((Cindy Weinstein)))

February 21 was National Caregiver's Day. I was thinking about caregiving (in fact, speaking about it at #UCSF) but didn't post. Here is a photo of my mother and father, Tzip and Jerry, on their honeymoon. Both are gone. Many years of her life were dedicated to taking care of my father, who died of early-onset Alzheimer's. I love this photo.

#EndAlz
#Caregiving

Black and white photo of my mom and dad. Mom on the left with black v-neck t-shirt and plaid knicker pants sitting next to my dad whose arm is around hers.
Public
(((Cindy Weinstein)))

February 21 was National Caregiver's Day. I was thinking about caregiving (in fact, speaking about it at #UCSF) but didn't post. Here is a photo of my mother and father, Tzip and Jerry, on their honeymoon. Both are gone. Many years of her life were dedicated to taking care of my father, who died of early-onset Alzheimer's. I love this photo.

#EndAlz
#Caregiving

Black and white photo of my mom and dad. Mom on the left with black v-neck t-shirt and plaid knicker pants sitting next to my dad whose arm is around hers.
Public
(((Cindy Weinstein)))

On 2.21, please join me & #neurolgists Drs. Bruce Miller & LuisMartinez for a panel discussion on the value of sharing narratives re: #dementia's profound impact on those who know & love someone w/#Alzheimers, which is pretty much everyone. Bruce & I will talk about how we wrote Finding the Right Words: A Story of Literature, Grief, and the Brain, & Luis will discuss Pipo, Don't Forget Me. It is hosted by #UCSF & the Alzheimer's Association.

gbhi.org/events/narrative-show

#EndAlz
#caregiving

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public *
(((Cindy Weinstein)))

On 2.21, please join me & #neurolgists Drs. Bruce Miller & LuisMartinez for a panel discussion on the value of sharing narratives re: #dementia's profound impact on those who know & love someone w/#Alzheimers, which is pretty much everyone. Bruce & I will talk about how we wrote together Finding the Right Words: A Story of Literature, Grief, and the Brain, & Luis will discuss Pipo, Don't Forget Me. It's hosted by #UCSF & the Alzheimer's Association.

gbhi.org/events/narrative-show

#EndAlz
#caregiving

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
(((Cindy Weinstein)))

Please join me for this #UCSF event, Dementia Stories for Impact. We'll be exploring the value of sharing stories of #dementia. How narratives combat #stigma, educate readers & #caregivers about #brain health, offer #empathy, & help others w/#grief. Dr. Bruce Miller & I will discuss the memoir we wrote in honor of my father, Jerry, who died of early-onset #Alzheimers, & Dr. Luis Martinez will discuss his children's book about dementia.

gbhi.org/events/narrative-show

#EndAlz
#Alzheimer'sAssociation

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
(((Cindy Weinstein)))

Please join me for this #UCSF event, Dementia Stories for Impact. We'll be exploring the value of sharing stories of #dementia. How narratives combat #stigma, educate readers & #caregivers about #brain health, offer #empathy, & help others w/#grief. Dr. Bruce Miller & I will discuss the memoir we wrote in honor of my father, Jerry, who died of early-onset #Alzheimers, & Dr. Luis Martinez will discuss his children's book about dementia.

gbhi.org/events/narrative-show

#EndAlz
#Alzheimer'sAssociation

Global Brain Health InstituteGlobal Brain Health Institute | Narrative Showcase: Dementia Stories for ImpactStorytelling transports us into the lives of others. A story raises awareness and reaches across identities. A story creates connections and emphasizes areas for change. In discussions about dementia including the complexities of Alzheimer’s disease and other neurodegenerative conditions, the art of narrative is a powerful global tool. Join us for the second webinar in the Narrative Showcase: Dementia Stories for Impact series, titled: "Dementia, Life Course, and Storytelling." The webinar will highlight two approaches in narrative to bring attention and understanding about dementia. First, writing toward an adult audience through a personal narrative as a daughter and having the scientific context to understand the changes in her father’s brain in the book written by Cindy Weinstein and Bruce Miller, Finding the Right Words. Then, writing for a young audience of English- and Spanish-speaking children, and making the message accessible through a beloved animal’s point of view in the book written by Luis Martinez, Pipo, Don’t Forget Me. Both stories across the life course educate about dementia and advocate for empathy in the light of a debilitating disease. Their stories trace not just the challenges, but also the sparks of hope in the midst of dementia.ObjectivesWebinar participants will: Hear from authors in the neurosciences and the humanities who reach both adult and young audiences Understand their motivations to craft stories about the human experience and changes in the brainLearn how these stories amplify important messages of advocacy and awareness about neurologic health ModeratorsFionnuala Sweeney (Ireland), Journalist & Broadcaster -  Former Anchor/Correspondent with CNN International; Multimedia Editor, Atlantic Institute; Atlantic Fellow for Equity in Brain Health, Global Brain Health Institute (GBHI). Creator of podcast series, Dementia is Global.Oz Ismail, PhD, Director, Scientific Programs, Alzheimer's AssociationPanelistsBruce Miller, MD, Neurologist; Director, Memory and Aging Center, University of California San Francisco; Founding Director, Global Brain Health Institute; Co-Author, Finding the Right WordsCindy Weinstein, PhD, Professor of English, Caltech; Atlantic Fellow for Equity in Brain Health; Co-Author, Finding the Right WordsLuis Martinez, MD, Neurologist; Assistant Clinical Research Coordinator, Memory and Aging Center, University of California, San Francisco; Author, Pipo, Don’t Forget Me
Public
sgt1372

#MedicalBills

I get my #MedicalCare at #UCSF & I've never failed to pay a bill when due

I just got a bill from UCSF for $425 for uncovered charges, which I am contesting, that was posted on 1/2/25 & isn't due to be paid til 2/2/25.

However, in just a week, I've received over 6 "reminders" by text & email to pay this bill & it getting really ANNOYING!!! 😡

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