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I teach undergrads at a prestigious programme in a research university. Most of my students don't know how to copy a file from a folder to another on their computer. I teach computer-based skills and it's often a source of grief and self doubt to these able, confident, well off young people. On a few occasions, of tears.

My mother, disabled and with a mental health condition, has dropped out from her #cancer treatment because she wasn't able to get through the ticketing system at the reception of the hospital. She lived in the capital, had a caring daughter available on the phone, and a network of support.

I just got a glimpse of the #autism treatment in the #Netherlands, a progressive country with high digital literacy. Autism diagnosis requires a referral from a GP, but the GP does not necessarily know much about autism and autism treatment centers are extremely specific about what needs to be mentioned in the referral. I am told that many autistic people have difficulty making phone calls. The autism diagnosis and treatment facility can only be contacted by phone. The waiting time for appointment is 30 weeks and, when the appointment takes place and your case turns out to differ in any way from what your uninformed GP has written in the referral, your case gets rejected and you have to get a new referral and start again. The GP could get instructions from the treatment center via a dedicated system called zorgmail, but neither side knows how to use it. If you manage to log into the online appointment system that is, which does not work and has no contact information to any support. I, a numerate computer nerd who enjoys puzzles, needed three days to crack it.

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☠️ #uxdesign saves lives ⛑️

🏥 #uxdesign should be obligatory in the process of #patient intake and journey 💉

👧 Digital medical services should be accessible to teenagers with confidence issues and elderly people terrified by a terminal diagnosis. 👴 🤰 👨‍🦯

Elderly patients can deteriorate hourly in the ER. This team works against the clock to get them out
It may seem counterintuitive, but hospital emergency rooms can be hazardous to the health of elderly patients. The chaotic environment can cause delirium and deconditioning to set in fast, and some patients never leave the hospital again. An innovative team at St. Mary's...
#hospital #patient #health #elderly #Montreal #Radio
cbc.ca/radio/whitecoat/geriatr

We're In This Together!

Renegade Research is on a mission to help people manage and recover from #MECFS and #longCOVID. It is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research with a focus on ME/CFS, longCOVID and other infection associated chronic illnesses.

Remission Biome is a project of Renegade Research.

✅️ Learn more: renegade-research.org and remissionbiome.org

Continued thread

Alexis McGill Johnson, president of Planned Parenthood Federation of America, said buffer zones are necessary to ensure safe #access to #health-care centers.

“No #patient should have to encounter #threats, #intimidation, & #attacks while seeking #healthcare — & no #medical provider or health center staff should be threatened because of their work to deliver #abortion care to patients in need….Buffer zones & bubble zones help to create a safer environment for patients, providers, & staff.”

Unser #Gesundheitswesen ist sehr komplex. Dadurch ist es einerseits schwierig, sich zurechtzufinden, aber andererseits auch, gute #Gesundheitentscheidungen zu treffen.

Eigentlich sollten Praxen, Kliniken, Apotheken etc. individuelle Entscheidungen erleichtern. Doch das klappt oft noch nicht so gut. Womit hat das zu tun? Und wie könnte es besser werden? Die Expertin Eva-Maria Bitzer hat Antworten.

(€) riffreporter.de/de/wissen/inte
#Medizin #Gesundheit #Arzt #Patient #Klinik #Apotheke #Praxis

Most days at Manitoba's largest hospital are 'morally grating,' says ER nurse at HSC
A Manitoba nurse who has worked at the Health Sciences Centre emergency room in Winnipeg for decades is speaking out about the challenges health-care workers face at Manitoba's largest hospital, where patients face day-long waits among 'chaos.'
#hospital #healthcare #nurse #patient #Manitoba #Winnipeg
cbc.ca/news/canada/manitoba/nu

Continued thread

Unser #Gesundheitswesen ist wie man sieht, sehr komplex.

Im europäischen Vergleich schneidet es deshalb seit Jahren schlechter ab als andere, wenn man Patient:innen fragt, wie gut sie sich zurechtfinden.

Das Problem haben Fachleute natürlich längst erkannt und es gibt auch Vorschläge, wie sich das verbessern ließe.

(€) riffreporter.de/de/wissen/arzt

RiffReporter · Arzt, Klinik, Krankenkasse: Gesundheitswesen kaum zu durchschauenBy Iris Hinneburg