@alexisbushnell I can totally relate. I used to love the hectic madness of wok frying. Have had to rethinking cooking. I'm discovering the joys of unpeeled roast veg. Slow preparation and long cooking. Happy to share recipes.
#PEM #Pacing.

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"Based on experiences in the Long COVID community, we hypothesized that wearable devices can help individuals pace and reduce their Long COVID symptom severity."

#LongCovid #pacing
@longcovid

Here's a little executive function tip based on my Splines Theory.

If you're having trouble starting a complicated and boring task, give yourself time to "load the splines." Splines are just my silly word representing the fact that ADHD and autistic people are more detail-oriented. We have a hard time accessing an idea by its summary, and need to think about the whole system with all its parts (splines) in order to grapple it. This takes time and energy.

But the good news is, reticulating splines is mostly a passive activity. First step, the hardest, is communicating to your brain about what it needs to load.

A few hours ago when I started gathering paperwork for taxes, I felt incredibly overwhelmed and my chronic pain was activated. So I pushed myself to kinda get started (updating my list from last year, opening the email folder, creating some folders on my computer), but then I hit a wall. Under intense overwhelm, I couldn't get started turning those emails into PDFs.

But my brain knows what it needs to do. It just needed time. I entered my passive splines reticulating phase, which can take anywhere from a few hours to a few days. Since I only have a week to get this to my CPA, the sooner I started the loading process, the better. Most of that happens in the background. The hardest part was telling my brain to start, which I did by giving a glance to the body of details I will need to absorb.

Then I went did a couple of hours of paid writing work which my brain normally expects on a Monday (so that went easier). And then back to taxes to see if things were flowing better.

And they are! I still hate it! But now my mind has an understanding of the task and it doesn't seem impossible.

I will work on it until I feel sick and foggy again, then I will pick up tomorrow where I expect it to go even more smoothly.

Here's my 2013 post on Splines Theory of neurodiverse executive function.

#taxes #ADHD #ActuallyAutistic #pacing #MECFS

https://www.corbden.com/2013/10/splines-theory-spoons-metaphor-for.html

@farfadoc : le site de #MillionsMissing offre sur son site de la documentation à consulter pour les médecins.
Ci-joint, le site belge pour les professionnels...
Il y a aussi l'association #AprèsJ20 à qui vous pouvez demander.
(si seulement tous les médecins étaient comme vous!)
Mon interniste m'a recommandé la lecture d'un article dans la revue Nature aussi. Mais c'est de la recherche et pas des infos pratiques pour les patients.
Appliquer le #Pacing essentiellement!

https://www.millionsmissingbelgique.com/professionnels-de-sant%C3%A9

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“Anything worth doing is worth doing slowly with many breaks”

#Pacing #chronicillness #MEcfs #LongCovid #ChronicPain @chronicpain #spoonie #spoonies
@chronicillness @spoonies @longcovid @mecfs