scattershot<p>Happy (?!) ME/CFS Awareness Day. </p><p>Happy what? Chronic Fatigue Syndrome.</p><p>Chronic Fatigue Syndrome? Yes. </p><p>Tired all the time? Yes. </p><p>Surely rest will help you get better? No. </p><p>How about graded exercise therapy? No. </p><p>What other symptoms are there? Brain fog, upset stomach, exhaustion, aches and pains, intolerance of loud noises and bright lights. And more. <br> <br>So doctors know what causes it? No. </p><p>Surely they’re doing research? Also no. </p><p>Probably because not many people suffer from it? About 1% of the UK population? Not counting those with Long Covid. Which is similar. If you want to include them, just add another 2 million people. </p><p>Is there funding? Not really. Less than hayfever research. </p><p>What’s the economic burden of ME/CFS in the UK? £3.3 billion [1]</p><p>Is there a cure? No. </p><p>So what do you do? 🤷🏻🤷♀️</p><p><a href="https://merveilles.town/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://merveilles.town/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://merveilles.town/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicfatigue</span></a> <a href="https://merveilles.town/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://merveilles.town/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>autoimmune</span></a></p><p>[1] <a href="https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs#:~:text=The%20economic%20case,April%202014%20to%20March%202015" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">gov.uk/government/consultation</span><span class="invisible">s/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs#:~:text=The%20economic%20case,April%202014%20to%20March%202015</span></a>).</p>