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#cerebralpalsy

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TrekLongIsland<p>Will you be at Sci-Fi Mini-Con? Supporting Cerebral Palsy Association of Nassau County , this is a FREE event to not miss! <a href="https://mastodon.world/tags/cerebralpalsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cerebralpalsy</span></a> <a href="https://mastodon.world/tags/DEI" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DEI</span></a> <a href="https://mastodon.world/tags/starwars" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>starwars</span></a> <br>Please Share!!<br><a href="https://www.cpnassau.org/event/sci-fi-mini-con-2025/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cpnassau.org/event/sci-fi-mini</span><span class="invisible">-con-2025/</span></a></p>

Christy Brown was born on 5 June 1932 in Crumlin, Dublin. He had 22 siblings of whom 9 died in infancy. He was an Irish writer and painter who had cerebral palsy and was able to write or type only with the toes of one foot.

His most recognised work is an autobiography, My Left Foot (1954). It was later made into a 1989 film of the same name, starring Daniel Day-Lewis as Brown.

Day 6 of dealing with back pain; at least I can walk today.
The pain is below my spine, between my sides.. my best guesss is I pulled a mustle, and due to my #CerebralPalsy and #Scoleosis I heal from these things slower.
Took a bubble bath yesterday and used Dr. Teals Hemp bubble bath which first of all smelt way better than I expected, and it releaved SO much of my discomfort. I wish I remembered Hemp also makes one sleepy; took this bath in the afternoon and then took mini naps through the evening LOL.
Thankfully I have the day off work, and it will be a lo key day. Maybe work on my #LEGO Friends Mobile Bakery Cart build, and clean the house.

#PSA about some #misinformation...

#CerebralPalsy is a #PhysicalDisability, not a #MentalDisability, the same as any other #NerveDamage, #NervousSystemDisorder, or #MobilityImpairment. Just because someone is in a wheelchair and has trouble talking does not mean they are "nonverbal" or have any issue with thinking. In fact, the number one stressor of people with cerebral palsy is the widespread misconception that they have a mental disorder: they are not, they have normally functioning brains with malfunctioning connections.

Regardless, #Disabled people, mental or otherwise, can still be #queer, and are still able to make decisions about their own lives for themselves. Even a severe mental impairment is not going to make someone believe they are #gay or #transgender when they are not.

This is simply a fact of reality, and it is the case whether the president of the United States, the owner of Twitter, or the moderators of Instagram accepted as true.

- TechHub #Moderation

(Context in reply)

Continued thread

I guess the slightly more optimistic and less swear-y addendum I want to put here also serves as a summary:

The saddest most angering/frustrating thing is it really is a great school that she worked her butt off to get into and I know she loves the training that she’s getting there and the people she’s working with. But she’s simply not able to enjoy any of it, because of the isolation and honestly pain of all the interalized stigma that she doesn’t easily shake off. She’s living her dream of studying acting in the top city in the world for it and she just feels bad all the time and it’s so unfair.

And I really want to be able to say to her, “This is a beautiful place for you and represents an incredible accomplishment requiring enormous reserves of strength and courage for you to even be standing where you are. And you deserve every good thing and feeling that should come along with that accomplishment. Please do not let the ableist bastards nor the bastard institutional abilism of this sick society take that away from you by ever believing for a second that you are less than anyone because of your disability nor any other reason. The reason your legs get so tired is because of all the asses you are kicking”

But the thing is, she’s an 18yo kid. She needs to hear this message from someone who isn’t her dad. And I don’t know where to find them and that makes me feel horribly discouraged

My kid is on the struggle bus today and every day it seems, even believing that she can make it through another semester of college (this is a kid with straight As full of a quadruple helping of Midwestern nice living in the naked city who everyone likes on sight) and it makes me want Ableism to become incarnate right in front of me so I can punch it right in the fucking face

Assholes on the bus telling her that her walker is in the way are pretty much ruining the whole thing for her. I mean it’s not quite that simple, but almost. Add in scores of similar microaggressions, and the enormous horrible fact the toll of spoons that bullshit takes on the daily exhausts her so she ends up isolated and missing out on social life and feeling isolated. Plus she NEEDs the time to sit quietly in her room and decompress, and I’m glad she knows to take again, but again that comes with missed opportunities to get out and be a student in New York and form friendships and alliances with her peers. She paid her fucking $2.90 and deserves to take up space just like any human. “your walker is in the way” == “people like you should go to the back of the bus” plain and fucking simple as that.

And while I sincerely believe that the college as an institution intends to be inclusive and the people in disability services specifically and the admin in general are all kind and well-meaning people, they have been contributing approximately zero in the way of creative ways to help her confront and cope with this offensive and dehumanizing bullshit that she has to deal with on the daily simply to commute to class. All though to be fair, I don’t know what the fuck to do to help either. God DAMN it

Reposting this #Introduction My name is Chris, & I am funky! I was on #Mastodon last year, but I left, & now I'm back. As my bio says, I'm a huge #Prince fanatic & I love #FrenchCinema & #FrenchLiterature. I'm from #Minnesota, and I'm #disabled in a #wheelchair w/ spastic quadriplegic #CerebralPalsy. I'm an independent #academic researcher focusing on applying #Lacanian #psychoanalysis #psychoanalytic theory to #literature and #film #cinema. I'm one of the #WritersOfMastodon in #sciencefiction

12 minutes without oxygen robbed Mark of the chance to walk or speak independently. But Mark has co-written an opera and will perform in a staging of its first act next week. @publicsource brings us a remarkable story publicsource.org/opera-cerebra #cerebralpalsy #Pittsburgh #opera

PublicSource · Mark can’t talk independently, but co-wrote — and stars in — a new operaBy Bill Zlatos

As new surgical approaches are developed, new medications become available, and new data are collected on the effects of treatments, clinical care for cerebral palsy continues to evolve. This Research Roundup podcast episode covers recent research on surgical interventions and medications for managing symptoms of cerebral palsy.

cparf.org/cwp-s3-ep14/

cparf.orgEpisode Fourteen | Changing What’s Possible: The Disability Innovation Podcast | Season Three | Cerebral Palsy Alliance Research FoundationListen to Episode Thirteen, Season Three of Changing What’s Possible on Apple, Spotify, & Audible.