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#shareyourcolours

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Petra Sitte<p>Im Krankenhausreformgesetz der Bundesregierung kommen derzeit seltene Erkrankungen nicht vor. Das muss geändert werden, um Zentren für seltene Erkrankungen und bestehende Forschungsverbünde nicht zu gefährden. <a href="https://social.linksfraktion.de/tags/RareDiseaseDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RareDiseaseDay</span></a> <a href="https://social.linksfraktion.de/tags/RareDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RareDisease</span></a> <a href="https://social.linksfraktion.de/tags/ShareYourColours" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ShareYourColours</span></a> <a href="https://social.linksfraktion.de/tags/LightUpForRare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LightUpForRare</span></a> <a href="https://social.linksfraktion.de/tags/TagderSeltenenErkrankungen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>TagderSeltenenErkrankungen</span></a></p>
Chandani DeZure, MD<p>DID YOU KNOW? <br />🔹️25 million people suffer from PH in 🌎?<br />🔹️3 in 4 pts have advanced dz by the time of dx<br />🔹️cost of therapies $100k/yr<br /><a href="https://med-mastodon.com/tags/phaware" class="mention hashtag" rel="tag">#<span>phaware</span></a> <a href="https://med-mastodon.com/tags/RareDiseaseDay" class="mention hashtag" rel="tag">#<span>RareDiseaseDay</span></a> <a href="https://med-mastodon.com/tags/ShowYourStripes" class="mention hashtag" rel="tag">#<span>ShowYourStripes</span></a> <a href="https://med-mastodon.com/tags/ShareYourColours" class="mention hashtag" rel="tag">#<span>ShareYourColours</span></a> <br />---<br />RT @PHAssociation<br />More than 25 million people in the U.S. and 300 million people worldwide are impacted by a rare disease. <a href="https://med-mastodon.com/tags/Pulmonaryhypertension" class="mention hashtag" rel="tag">#<span>Pulmonaryhypertension</span></a> is often associated with other <a href="https://med-mastodon.com/tags/rarediseases" class="mention hashtag" rel="tag">#<span>rarediseases</span></a> such as <a href="https://med-mastodon.com/tags/scleroderma" class="mention hashtag" rel="tag">#<span>scleroderma</span></a>, <a href="https://med-mastodon.com/tags/HHT" class="mention hashtag" rel="tag">#<span>HHT</span></a>, idiopathic <a href="https://med-mastodon.com/tags/pulmonary" class="mention hashtag" rel="tag">#<span>pulmonary</span></a>…<br /><a href="https://twitter.com/PHAssociation/status/1630572366739718146" target="_blank" rel="nofollow noopener noreferrer" translate="no"><span class="invisible">https://</span><span class="ellipsis">twitter.com/PHAssociation/stat</span><span class="invisible">us/1630572366739718146</span></a></p>
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