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#qualitytalk

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Jan R. Boehnke<p>Newsletter reporting Quality of Life Research awards and statistics from 2022<br><a href="https://www.isoqol.org/news-from-quality-of-life-research-2024/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/news-from-quality-o</span><span class="invisible">f-life-research-2024/</span></a></p><p>We (+ Brittany Lapin, Richard Skolasky) are immensely grateful to all authors submitting, our team of associate editors, and everyone else supporting the journal (e.g., peer-review, language editing)!</p><p><a href="https://mastodon.social/tags/QualityTALK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QualityTALK</span></a> <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HRQL</span></a> <a href="https://mastodon.social/tags/NightshiftEditor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NightshiftEditor</span></a></p>
Jan R. Boehnke<p>Explore research from <a href="https://mastodon.social/tags/ISOQOL23" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL23</span></a>, abstracts now published:<br><a href="https://rdcu.be/dr2hG" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">rdcu.be/dr2hG</span><span class="invisible"></span></a></p><p>Have also a look at the October issue of <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a> <a href="https://mastodon.social/tags/QualityTALK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QualityTALK</span></a>, which highlights ten of the presentations:<br><a href="https://www.isoqol.org/qualitytalk-18-october-2023/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/qualitytalk-18-octo</span><span class="invisible">ber-2023/</span></a></p><p><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HRQL</span></a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Psychometrics</span></a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HealthEconomics</span></a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PatientCentered</span></a><br>Edit: spelling hashtag</p>
Jan R. Boehnke<p>In <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a>-s <a href="https://mastodon.social/tags/QualityTALK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QualityTALK</span></a>, Carolyn Schwartz provides an insight into her development as a researcher<br><a href="https://www.isoqol.org/the-story-behind-the-elephant-in-the-room-a-long-journey-begins-with-a-single-step/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/the-story-behind-th</span><span class="invisible">e-elephant-in-the-room-a-long-journey-begins-with-a-single-step/</span></a></p><p>Reflecting on research experiences with people living with Multiple Sclerosis, she realised that what was important to patients did not form a consistent hierarchy of domains for each patient over time. This led her into <a href="https://mastodon.social/tags/ResponseShift" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ResponseShift</span></a> research and she discusses her most recent <a href="https://mastodon.social/tags/SysReview" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SysReview</span></a> on the importance of the phenomenon in <a href="https://mastodon.social/tags/RCTs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RCTs</span></a> <a href="https://mastodon.social/tags/Trials" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Trials</span></a>:<br><a href="https://jpro.springeropen.com/articles/10.1186/s41687-022-00510-6" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">jpro.springeropen.com/articles</span><span class="invisible">/10.1186/s41687-022-00510-6</span></a></p>
Jan R. Boehnke<p>Members of <a href="https://mastodon.social/tags/ISOQOL_CP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL_CP</span></a> discuss in <a href="https://mastodon.social/tags/QualityTALK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QualityTALK</span></a> <a href="https://mastodon.social/tags/ImplementationScience" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ImplementationScience</span></a> for <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>HRQL</span></a> research:<br><a href="https://www.isoqol.org/why-proms-in-clinical-practice-matter-an-introduction-to-the-clinical-practice-special-interest-group/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/why-proms-in-clinic</span><span class="invisible">al-practice-matter-an-introduction-to-the-clinical-practice-special-interest-group/</span></a></p><p>IS acknowledges dynamic relationships between individual clinicians and the wider context of the intervention (e.g., organizational context, structures, patient engagement). It is highly useful for developing PROMs and <a href="https://mastodon.social/tags/FeedbackSystems" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FeedbackSystems</span></a>.</p><p>The group published five articles explaining these ideas in more detail in our <a href="https://mastodon.social/tags/FeedbackTools" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FeedbackTools</span></a> special issue:<br><a href="https://link.springer.com/journal/11136/volumes-and-issues/30-11" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">link.springer.com/journal/1113</span><span class="invisible">6/volumes-and-issues/30-11</span></a></p><p><a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a></p>
Jan R. Boehnke<p>In <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a>-s most recent <a href="https://mastodon.social/tags/QualityTALK" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QualityTALK</span></a>, a team argues that while such a modular approach has advantages, it complicates the decision of choosing a PROM. The selection should take account of the overall trial objectives and context (e.g., see <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ISOQOL</span></a>, <a href="https://mastodon.social/tags/SPIRITPRO" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SPIRITPRO</span></a>, <a href="https://mastodon.social/tags/SISAQOL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SISAQOL</span></a>) and involve all relevant stakeholders. <br><a href="https://www.isoqol.org/implementing-the-fdas-draft-guidance-on-core-pros-in-cancer-trials-the-challenge-of-a-modular-approach/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/implementing-the-fd</span><span class="invisible">as-draft-guidance-on-core-pros-in-cancer-trials-the-challenge-of-a-modular-approach/</span></a></p><p>Link to ISOQOL's perspective: <a href="https://www.isoqol.org/wp-content/uploads/2023/07/ISOQOL-R_HE-SIG-Comments-on-PFDD-Draft-Guidance-4_Final.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">isoqol.org/wp-content/uploads/</span><span class="invisible">2023/07/ISOQOL-R_HE-SIG-Comments-on-PFDD-Draft-Guidance-4_Final.pdf</span></a><br>and a commentary presenting the position:<br><a href="https://link.springer.com/article/10.1007/s11136-023-03396-z" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">link.springer.com/article/10.1</span><span class="invisible">007/s11136-023-03396-z</span></a></p><p><a href="https://mastodon.social/tags/FDA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FDA</span></a></p>
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