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#narcolepsy

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Mark Patterson, MD, PhD<p>Glad to share info about <a href="https://med-mastodon.com/tags/narcolepsy" class="mention hashtag" rel="tag">#<span>narcolepsy</span></a> awareness at the <a href="https://med-mastodon.com/tags/WakeUpNarcolepsy" class="mention hashtag" rel="tag">#<span>WakeUpNarcolepsy</span></a> national summit in <a href="https://med-mastodon.com/tags/Durham" class="mention hashtag" rel="tag">#<span>Durham</span></a>, NC.</p>
Malcolm Nance<p>We Are In Serious Danger.</p><p><a href="https://defenseofliberty.social/tags/Tourette" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Tourette</span></a>’s syndrome was first identified in 1885<br><a href="https://defenseofliberty.social/tags/Narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcolepsy</span></a> was first identified in 1877<br><a href="https://defenseofliberty.social/tags/Autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autism</span></a> was first identified in 1943<br><a href="https://defenseofliberty.social/tags/ADHD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ADHD</span></a> was identified in 1902</p>
Mark Patterson, MD, PhD<p>It&#39;s great seeing the topic of <a href="https://med-mastodon.com/tags/narcolepsy" class="mention hashtag" rel="tag">#<span>narcolepsy</span></a> receiving attention and to see this award given to such worthy researchers! <br /><a href="https://youtu.be/VTZD3RvsrZQ?si=vSQyS9MdKVqu9Pk2" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://</span><span class="ellipsis">youtu.be/VTZD3RvsrZQ?si=vSQyS9</span><span class="invisible">MdKVqu9Pk2</span></a></p>
Juli O'Connor<p>Starting to realize firsthand why there are very few people with <a href="https://mathstodon.xyz/tags/Narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcolepsy</span></a> in academia :(</p>
Mark Patterson, MD, PhD<p>Happy <a href="https://med-mastodon.com/tags/StPatricksDay" class="mention hashtag" rel="tag">#<span>StPatricksDay</span></a> to all who celebrate. May you have as much luck in catching a <a href="https://med-mastodon.com/tags/leprechaun" class="mention hashtag" rel="tag">#<span>leprechaun</span></a> as I did in <a href="https://med-mastodon.com/tags/Dublin" class="mention hashtag" rel="tag">#<span>Dublin</span></a> a few years ago. The event was a <a href="https://med-mastodon.com/tags/narcolepsy" class="mention hashtag" rel="tag">#<span>narcolepsy</span></a> <a href="https://med-mastodon.com/tags/bedrace" class="mention hashtag" rel="tag">#<span>bedrace</span></a> I helped organize.</p>
Juli O'Connor<p>I wish my body worked properly :c Recently it just seems to be falling more and more apart. I injured my meniscus over a month ago and that still hurts a ton, and this isn't helped by the fact that Pittsburgh is quite honestly one of the worst cities to get around on crutches. I've had non-stop digestive issues since winter break and I can't figure out why, which is also the reason I'm still up this late. I'm still getting over a truly awful case of the flu, and I've lost a scary amount of weight from it. I haven't been able to maintain a consistent enough eating schedule to take my <a href="https://mathstodon.xyz/tags/Narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcolepsy</span></a> meds, so my sleep has been awful. And I just am doing really poorly mentally given all this and also the current events. So yeah :( Wonder what my life would've been like if my body actually functioned like it was supposed to. Wish I could've known.</p>
NaClKnight is still Black AF<p>Real talk, no jokes,</p><p>does a <a href="https://c.im/tags/Narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcolepsy</span></a> medical diagnosis count as an "invisible" <a href="https://c.im/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a>? Cause i definitely needed accommodations in college</p><p>On the other hand, there are at least 25 students who did worse on their calc final than the MF who fell sleep (and woke up) during the test</p>
Tom Kindlon<p>Combining Topic Modeling, Sentiment Analysis, &amp; Corpus Linguistics to Analyze Unstructured Web-Based Patient Experience Data: Case Study of Modafinil Experiences</p><p><a href="https://www.jmir.org/2024/1/e54321" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">jmir.org/2024/1/e54321</span><span class="invisible"></span></a></p><p>Comment: I have a concern it could false energy in ME/CFS &amp; make pacing difficult</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>fibromyalgia</span></a></span><br><a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Fibro</span></a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FMS</span></a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>FM</span></a> <a href="https://disabled.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a> <a href="https://disabled.social/tags/multiplesclerosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>multiplesclerosis</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/multiplesclerosis" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>multiplesclerosis</span></a></span></p>
Toadlyturtle<p>I'm raising $750 for travel to <span class="h-card" translate="no"><a href="https://mastodon.social/@SabiLewSounds" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>SabiLewSounds</span></a></span> in FL</p><p><a href="https://cash.app/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">cash.app/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://venmo.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">venmo.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://paypal.me/servingeternal" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">paypal.me/servingeternal</span><span class="invisible"></span></a><br><a href="https://ko-fi.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">ko-fi.com/toadlyturtle</span><span class="invisible"></span></a></p><p><a href="https://mastodon.social/tags/poverty" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>poverty</span></a> <a href="https://mastodon.social/tags/mutualaid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaid</span></a> <a href="https://mastodon.social/tags/mutualaidrequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaidrequest</span></a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://mastodon.social/tags/cptsd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cptsd</span></a> <a href="https://mastodon.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
Toadlyturtle<p>I'm raising $750 for travel to <a class="mention" href="https://mastodon.social/users/SabiLewSounds" rel="nofollow noopener" target="_blank">@SabiLewSounds.mastodon.social.ap.brid.gy</a> in FL <a href="https://cash.app/toadlyturtle" rel="nofollow noopener" target="_blank">cash.app/toadlyturtle</a> <a href="https://venmo.com/toadlyturtle" rel="nofollow noopener" target="_blank">venmo.com/toadlyturtle</a> <a href="https://paypal.me/servingeternal" rel="nofollow noopener" target="_blank">paypal.me/servingeternal</a> <a href="https://ko-fi.com/toadlyturtle" rel="nofollow noopener" target="_blank">ko-fi.com/toadlyturtle</a> <a href="https://bsky.brid.gy/hashtag/poverty" rel="nofollow noopener" target="_blank">#poverty</a> <a href="https://bsky.brid.gy/hashtag/mutualaid" rel="nofollow noopener" target="_blank">#mutualaid</a> <a href="https://bsky.brid.gy/hashtag/mutualaidrequest" rel="nofollow noopener" target="_blank">#mutualaidrequest</a> <a href="https://bsky.brid.gy/hashtag/mentalhealth" rel="nofollow noopener" target="_blank">#mentalhealth</a> <a href="https://bsky.brid.gy/hashtag/disability" rel="nofollow noopener" target="_blank">#disability</a> <a href="https://bsky.brid.gy/hashtag/autistic" rel="nofollow noopener" target="_blank">#autistic</a> <a href="https://bsky.brid.gy/hashtag/cptsd" rel="nofollow noopener" target="_blank">#cptsd</a> <a href="https://bsky.brid.gy/hashtag/narcolepsy" rel="nofollow noopener" target="_blank">#narcolepsy</a> <a href="https://bsky.brid.gy/hashtag/chronicpain" rel="nofollow noopener" target="_blank">#chronicpain</a> <a href="https://bsky.brid.gy/hashtag/chronicillness" rel="nofollow noopener" target="_blank">#chronicillness</a></p>
AstroMancer5G (she/her)<p>I was just reading the Mayo Clinic page for <a href="https://spore.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a>, and I think it pretty much all applies to me. Maybe I have undiagnosed narcolepsy?</p>
Toadlyturtle<p>$270 for toiletries/gas, $180 Raised</p><p>I'm also raising to relocate from OH to FL to be w/ Sabi &amp; family</p><p><a href="https://cash.app/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">cash.app/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://venmo.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">venmo.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://paypal.me/servingeternal" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">paypal.me/servingeternal</span><span class="invisible"></span></a></p><p><a href="https://mastodon.social/tags/poverty" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>poverty</span></a> <a href="https://mastodon.social/tags/mutualaid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaid</span></a> <a href="https://mastodon.social/tags/mutualaidrequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaidrequest</span></a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://mastodon.social/tags/cptsd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cptsd</span></a> <a href="https://mastodon.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
Toadlyturtle<p>Disabled w/o income, awaiting SSDI decision</p><p>$270 December Goal, $155 Raised</p><p><a href="https://ko-fi.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">ko-fi.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://cash.app/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">cash.app/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://venmo.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">venmo.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://paypal.me/servingeternal" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">paypal.me/servingeternal</span><span class="invisible"></span></a></p><p><a href="https://mastodon.social/tags/poverty" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>poverty</span></a> <a href="https://mastodon.social/tags/mutualaid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaid</span></a> <a href="https://mastodon.social/tags/mutualaidrequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaidrequest</span></a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://mastodon.social/tags/cptsd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cptsd</span></a> <a href="https://mastodon.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
Toadlyturtle<p>Disabled w/o income, awaiting SSDI decision</p><p>$270 December Goal, $105 Raised</p><p><a href="https://ko-fi.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">ko-fi.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://cash.app/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">cash.app/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://venmo.com/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">venmo.com/toadlyturtle</span><span class="invisible"></span></a><br><a href="https://paypal.me/servingeternal" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">paypal.me/servingeternal</span><span class="invisible"></span></a></p><p><a href="https://mastodon.social/tags/poverty" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>poverty</span></a> <a href="https://mastodon.social/tags/mutualaid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaid</span></a> <a href="https://mastodon.social/tags/mutualaidrequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mutualaidrequest</span></a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://mastodon.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> <a href="https://mastodon.social/tags/cptsd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cptsd</span></a> <a href="https://mastodon.social/tags/narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcolepsy</span></a> <a href="https://mastodon.social/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicpain</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
Toadlyturtle<p>Disabled without income, waiting on SSDI decision</p><p>I need help covering toiletries &amp; gas</p><p>December Goal<br>$170 Remaining<br>$100/$270 Raised</p><p><a href="https://linktr.ee/toadlyturtle" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">linktr.ee/toadlyturtle</span><span class="invisible"></span></a></p><p><a href="https://mastodon.social/tags/Autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autistic</span></a> <a href="https://mastodon.social/tags/cPTSD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cPTSD</span></a> <a href="https://mastodon.social/tags/Narcolepsy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcolepsy</span></a> <a href="https://mastodon.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicPain</span></a> <a href="https://mastodon.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a></p><p><a href="https://mastodon.social/tags/InternationalDayOfPersonsWithDisabilities2024" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>InternationalDayOfPersonsWithDisabilities2024</span></a><br><a href="https://mastodon.social/tags/InternationalDayOfPersonsWithDisabilities" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>InternationalDayOfPersonsWithDisabilities</span></a><br><a href="https://mastodon.social/tags/SupportDisabledCreators" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SupportDisabledCreators</span></a><br><a href="https://mastodon.social/tags/SupportDisabledArtists" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SupportDisabledArtists</span></a><br><a href="https://mastodon.social/tags/MutualAidSavesLives" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidSavesLives</span></a><br><a href="https://mastodon.social/tags/GivingTuesday2024" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GivingTuesday2024</span></a><br><a href="https://mastodon.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAidRequest</span></a><br><a href="https://mastodon.social/tags/DisabilityPride" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DisabilityPride</span></a><br><a href="https://mastodon.social/tags/GivingTuesday" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GivingTuesday</span></a><br><a href="https://mastodon.social/tags/MentalHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MentalHealth</span></a><br><a href="https://mastodon.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a><br><a href="https://mastodon.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disability</span></a><br><a href="https://mastodon.social/tags/Poverty" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Poverty</span></a></p>
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