Med-Mastodon

1 post1 participant0 posts today

Tom KindlonInternational Conference on MCS is taking place online in May to coincide with MCS-Awareness Month. You can register for May 1st, May 2nd or both days here <a href="https://aseq-ehaq.ca/en/resilience-registration/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://aseq-ehaq.ca/en/resilience-registration/</a><a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://disabled.social/tags/MultipleChemicalSensitivities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MultipleChemicalSensitivities</a> <a href="https://a.gup.pe/u/mcs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcs</a>

Tom KindlonRESILIENCE: The International Conference on Multiple Chemical Sensitivity (MCS)<a href="https://aseq-ehaq.ca/en/resiliencemcsconference/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://aseq-ehaq.ca/en/resiliencemcsconference/</a>People can watch this event for free online (a donation is recommended)Image from MCS-Aware email newsletter<a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a>

Tom KindlonFrom the MCS-Aware e-newsletter:Podcast on Environmental Health<a href="https://footprintsandimpactspodcast.buzzsprout.com/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://footprintsandimpactspodcast.buzzsprout.com/</a> <a href="https://podcasts.apple.com/ca/podcast/footprints-impacts-podcast/id1778267206" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://podcasts.apple.com/ca/podcast/footprints-impacts-podcast/id1778267206</a>(I haven’t vetted myself)<a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a>

Tom KindlonFrom the MCS-Aware e-newsletter:“Useful Information on MCS & ES   The EI wellspring gives practical information for coping with Multiple Chemical sensitivity and Electrosensitivity.   You can find out more here <a href="https://www.eiwellspring.org/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.eiwellspring.org/</a> “ (I haven’t vetted myself)<a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://a.gup.pe/u/mcs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcs</a>

Tom KindlonInternational survey on the suffering of fragrance-sensitive people<a href="https://evaluationen-thu.limequery.com/689193?lang=en" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://evaluationen-thu.limequery.com/689193?lang=en</a>Available in five European languages Has been running for a while and closes on February 28, 2025<a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://disabled.social/tags/Fragrance" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fragrance</a> <a href="https://a.gup.pe/u/mcs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcs</a>

Tom KindlonInternational Conference on Multiple Chemical Sensitivity (MCS), May 1 & 2, put together by the Environmental Health Association of Quebec (ASEQ-EHAQ).Free to anyone who has <a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> and you will be able to join online. You can register at <a href="https://aseq-ehaq.ca/en/resiliencemcsconference/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://aseq-ehaq.ca/en/resiliencemcsconference/</a>Via MCS Aware<a href="https://a.gup.pe/u/mcs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcs</a>

mango»Nein, wir tragen kein <a href="https://social.tchncs.de/tags/Parf%C3%BCm" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Parfüm</a>!« sagen die Pflegekräfte, die hier morgens für 5 Minuten mit anpacken. »Dann sind es eure Klamotten, die duften.« sage ich und reiße das Fenster auf, sobald sie gegangen sind, um den Parfümgestank rauszulassen. Jetzt habe ich schon wieder Kopfweh und verspüre Übelkeit, wie fast jeden Tag, wenn die PK da waren. Tausche eigenes Wohlbefinden gegen Entlastung bei der <a href="https://social.tchncs.de/tags/Pflege" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Pflege</a> = ein Teufelskreis.<a href="https://social.tchncs.de/tags/pflegendeAngeh%C3%B6rige" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pflegendeAngehörige</a> <a href="https://social.tchncs.de/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://social.tchncs.de/tags/Duftstoffe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Duftstoffe</a> (Notiz: <a href="https://blog.purenature.de/chemikaliensensibilitat-mcs/parfum-benutzt-dann-mussen-sie-drausen-bleiben/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://blog.purenature.de/chemikaliensensibilitat-mcs/parfum-benutzt-dann-mussen-sie-drausen-bleiben/</a>)

Tom KindlonKathleen describes the problems people living with Multiple Chemical Sensitivity (MCS) face. She also gives information on other MCS groups that may be useful. <a href="https://www.lymedisease.org/hidden-struggles-mcs/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.lymedisease.org/hidden-struggles-mcs/</a><a href="https://disabled.social/tags/MultipleChemicalSensitivity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MultipleChemicalSensitivity</a> <a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://a.gup.pe/u/mcs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcs</a>

Tom KindlonInvisible Youth Support Group meetings on Zoom."Are you between the ages of 13-21 suffering from ME, <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a>, <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a> or <a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a>?"Facebook group <a href="https://www.facebook.com/groups/invisibleyouthgroup" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.facebook.com/groups/invisibleyouthgroup</a><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a>

Tom KindlonA sample letter (which of course can be adjusted) that could be used to write to a neighbour to explain your environmental intolerances.From MCS Aware<a href="https://mcs-aware.org/wp-content/uploads/2024/05/Letter-to-give-to-neighbours-MCS-And-EHS-2024.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mcs-aware.org/wp-content/uploads/2024/05/Letter-to-give-to-neighbours-MCS-And-EHS-2024.pdf</a><a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> MCS@a.gup.pe <a href="https://disabled.social/tags/MultipleChemicalSensitivities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MultipleChemicalSensitivities</a> <a href="https://disabled.social/tags/MultipleChemicalSensitivity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MultipleChemicalSensitivity</a>

AI6YR BenUhhhhhh ummmm... <a href="https://m.ai6yr.org/tags/wind" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#wind</a> <a href="https://m.ai6yr.org/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a>

Tom KindlonCanada: Environmental sensitivities and scent-free policies: A guide for federally regulated employers and service providers (2024) - Canadian Human Rights Commission <a href="https://www.chrc-ccdp.gc.ca/en/resources/publications/environmental-sensitivities-and-scent-free-policies" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.chrc-ccdp.gc.ca/en/resources/publications/environmental-sensitivities-and-scent-free-policies</a><a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://disabled.social/tags/MultipleChemicalSensitivities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MultipleChemicalSensitivities</a> <a href="https://disabled.social/tags/ScentFree" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ScentFree</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a>

Tom KindlonPlastic-Free JulyFrom the free July 2024 e-newsletter of MCS Aware. Sign up here: <a href="https://mcs-aware.org/latest-newsletter/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mcs-aware.org/latest-newsletter/</a>Links in image: <a href="https://mcs-aware.org/articles/plastic-free-july/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mcs-aware.org/articles/plastic-free-july/</a> <a href="https://www.youtube.com/watch?v=ByayHG5CscE" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/watch?v=ByayHG5CscE</a><a href="https://disabled.social/tags/MCS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MCS</a> <a href="https://disabled.social/tags/PlasticFree" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PlasticFree</a>

ELSOMechanical circulatory support in cardiogenic shock: 🏛️ VA <a href="https://med-mastodon.com/tags/ECMO" class="mention hashtag" rel="tag">#ECMO</a> to be consigned to the museum? NO: systematic use of <a href="https://med-mastodon.com/tags/ECLS" class="mention hashtag" rel="tag">#ECLS</a> in AMICS not supported, but is useful as optimal therapies fail 🔍 available evidence & need for: real benefit of ECMO difficult to show in RCTs, especially as will likely continue to be used as rescue strategy 🪡 personalize management! Both VA-ECMO & MFP have a role in severe CS: select most appropriate <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> for the specific patient 🔓 <a href="https://rdcu.be/dLt6T" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://rdcu.be/dLt6T</a>

ELSOThe infection definitions for <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a>... appropriate for <a href="https://med-mastodon.com/tags/ECMO" class="mention hashtag" rel="tag">#ECMO</a>?? Be cautious: 🍄 most common fungi that cause BSIs are Candida species; if no risk of disseminated infections only obtain conventional blood culture 🩸 blood cultures generally positive from circuit/periphery: avoid accessing circuit. Culturing cannula tip impractical: consider device-related all primary BSI 🧫 circuit/cannula colonization well-described, implications unclear 🖇️ <a href="https://bit.ly/3RtWv5B" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://bit.ly/3RtWv5B</a> 🧫 Refers to 🔓 <a href="https://bit.ly/3y1UvdS" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://bit.ly/3y1UvdS</a>

ELSOBeyond one-size-fits-all in cardiogenic shock: microaxial flow pump, VA <a href="https://med-mastodon.com/tags/ECMO" class="mention hashtag" rel="tag">#ECMO</a> or tailored use of mechanical circulatory support? Overview of recent evidence 🫀 VA ECMO in AMI should be reserved for extreme CS 🫀 mAFP appears promising for CS due to STEMI & should be preferred MCS 🪜 initial mAFP use in CS with LV failure + <a href="https://med-mastodon.com/tags/ECLS" class="mention hashtag" rel="tag">#ECLS</a> in refractory cases or if severe RV failure may be promising ⚠️ high complication rates associated with <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> underscores need for personalized use 🖇️ <a href="https://bit.ly/4ekPmyd" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://bit.ly/4ekPmyd</a>

ELSOECMO alone vs ECPELLA as mechanical circulatory support in cardiogenic shock: 🔍 438 patients, 4 University hospitals 🇫🇷 🇯🇵🇹🇷 🔍 ECMO alone 72.8%, ECPELLA 27.2%: similar early/mid-term survival and incidences of complications ECMO & ECPELLA seems effective strategies in CS patients requiring temporary <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> for cardiogenic shock. Exploratory subanalyses suggest that simultaneous implantation of ECMO & Impella might shorten recovery time, with reduced ICU & hospital LoS. 🖇️ <a href="https://bit.ly/4dDWaH5" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://bit.ly/4dDWaH5</a>

ELSOReady for <a href="https://med-mastodon.com/tags/EuroELSO2024" class="mention hashtag" rel="tag">#EuroELSO2024</a>?? We definitely are.... See you all in 🇵🇱 Krakow! Educational activities start on April 24: be ready for 🎓 workshops labs & masterclasses 🎓 pre-congress tracks 🎓 congress sessions 🎓 educational corner(s) 🏆 cannulation cup <a href="https://med-mastodon.com/tags/ECLS" class="mention hashtag" rel="tag">#ECLS</a> <a href="https://med-mastodon.com/tags/ECPR" class="mention hashtag" rel="tag">#ECPR</a>, <a href="https://med-mastodon.com/tags/ECMO" class="mention hashtag" rel="tag">#ECMO</a> <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> <a href="https://med-mastodon.com/tags/simulations" class="mention hashtag" rel="tag">#simulations</a> <a href="https://med-mastodon.com/tags/NRP" class="mention hashtag" rel="tag">#NRP</a> <a href="https://med-mastodon.com/tags/PedsICU" class="mention hashtag" rel="tag">#PedsICU</a> & more!! 💻 Still time to register at euroelso-congress.com

ELSO📢 -10 days to <a href="https://med-mastodon.com/tags/EuroELSO2024" class="mention hashtag" rel="tag">#EuroELSO2024</a>: Join us in 🇵🇱 Krakow & doN'T miss an outstanding programme 🎓 outstanding pre-congress programme focusing on basics of <a href="https://med-mastodon.com/tags/ECLS" class="mention hashtag" rel="tag">#ECLS</a> 🎙️keynote statements in our plenary sessions 📃 multifaceted programme covering all aspects of <a href="https://med-mastodon.com/tags/ECMO" class="mention hashtag" rel="tag">#ECMO</a>, <a href="https://med-mastodon.com/tags/ECPR" class="mention hashtag" rel="tag">#ECPR</a> <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> <a href="https://med-mastodon.com/tags/EISOR" class="mention hashtag" rel="tag">#EISOR</a> in adults, peds & neonates + hands-on sessions like educational corners, cannulation cup... 🗺️ international faculty & experts in our field Register 💻 euroelso-congress.com Reduced fees for delegates from low income countries.

ELSO🫀Routine use of microaxial flow pump vs standard care alone in the treatment of patients with STEMI-related cardiogenic shock led to lower risk of death: results of DanGer Shock international, multicenter RCT out! 🔍 355 pts included in the final analysis 🪦 death from any cause 45.8% in <a href="https://med-mastodon.com/tags/MCS" class="mention hashtag" rel="tag">#MCS</a> group vs 58.5% in standard-care group ⚠️ incidence of composite of adverse events (bleeding, limb ischemia, hemolysis, device failure, worsening aortic regurgitation) higher with MCS 🖇️ <a href="https://bit.ly/43QZuK5" target="_blank" rel="nofollow noopener noreferrer" translate="no">https://bit.ly/43QZuK5</a>

Recent searches

Search options

Administered by:

Server stats:

#mcs