Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>: The heaviness of the stitching on this <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> represents how heavy and tingly my feet become during <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> flares and migraines.</p>
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#InvisibleDisabilitiesWeek
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Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>: The paresthesia/tingling in my hands doesn't usually interfere with my day to day but it worsens during my migraines. This <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> maps one of those days.</p>
Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>: One of my more disconcerting <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> symptoms is the paresthesia/tingling on my tongue. It worsens whenever I overextend myself. This <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> maps how my tongue usually feels.</p>
Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a> & <a href="https://vis.social/tags/WIPwednesday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>WIPwednesday</span></a>: May Thurner Syndrome (<a href="https://vis.social/tags/IliacVein" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IliacVein</span></a> compression syndrome) seems to be a common comorbidity with <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>. This <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> in progress is based off a venogram of my stent. 🧶🩺🧪🐡</p>
Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>: One of my main <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> symptoms is multiple paresthesias (tingling). This <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> maps the paresthesias in my face.</p>
Lia Pas<p>For <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>: This <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> explores the sensation of post-exertional malaise (PEM), the hallmark symptom of <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>. When I overextend myself physically, cognitively, or emotionally, I am too fatigued to even wash myself.</p>
Shantell Powell<p>This week is <a href="https://c.im/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>. I suffer from migraines, scintillating scotoma, asthma, several digestive disorders, Long COVID, chronic inflammation in my foot, tendonopathy, anxiety disorder, and a congenital hip defect. I'm also dealing with deteriorating bone mass. It especially affects my teeth, which fall apart with disturbing frequency. </p><p>At my absolute fittest, I was also at my most disabled. I looked like a fitness model yet could barely walk. No one wants to give their seat up on the bus for someone who looks young and healthy. Just because someone looks fit and healthy doesn't mean they aren't disabled. <a href="https://c.im/tags/InvisibleDisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisability</span></a> <a href="https://c.im/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a></p>
Lia Pas<p>This week is <a href="https://vis.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a>. My chronic illnesses are an invisible disability, especially <a href="https://vis.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a>: a neuroimmune disease that has a worse quality of life measurement than any other. This <a href="https://vis.social/tags/SciArt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SciArt</span></a> <a href="https://vis.social/tags/symptomatology" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>symptomatology</span></a> <a href="https://vis.social/tags/embroidery" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>embroidery</span></a> maps out my symptoms as they were in 2016.</p>
Dermot Devlin<p>2023 Invisible Disabilities® Week!</p><p>I have MPS Morquio, which is very visible.</p><p>My Way Access sees you and believes you.</p><p><a href="https://mastodon.ie/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a> <a href="https://mastodon.ie/tags/InvisibleDisabilities" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilities</span></a><br><a href="https://mastodon.ie/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disability</span></a><br><a href="https://mastodon.ie/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Disabled</span></a></p>
Carrie 🌏 My Several Worlds<p>Waking up with <a href="https://mindly.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> every morning: <a href="https://mindly.social/tags/CPP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CPP</span></a> <br>Don't cry. Don't cry. Don't cry. <br>Don't cry. Don't cry. Don't cry. <br>Don't cry. Don't cry. Don't cry. <br>Don't cry. Don't cry. Don't cry. <br><a href="https://mindly.social/tags/axSpA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>axSpA</span></a> <a href="https://mindly.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mindly.social/tags/MyDisabledLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyDisabledLife</span></a> <a href="https://mindly.social/tags/IWD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IWD</span></a> <a href="https://mindly.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a><br><a href="https://mindly.social/tags/CareInMotion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CareInMotion</span></a> <a href="https://mindly.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mindly.social/tags/PsA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PsA</span></a></p>
Carrie 🌏 My Several Worlds<p>Today is the start of <a href="https://mindly.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a> aka <a href="https://mindly.social/tags/IWD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IWD</span></a>!</p><p>"I need to be vocal about my disability because I don't look sick. You will never see me on days I do look sick because those are the days I don't leave my bed." Carrie, MySeveralWorlds.com</p><p><a href="https://mindly.social/tags/IDW23" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IDW23</span></a> <a href="https://mindly.social/tags/CareInMotion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CareInMotion</span></a> <a href="https://mindly.social/tags/ButYouDontLookSick" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ButYouDontLookSick</span></a> <a href="https://mindly.social/tags/axSpA" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>axSpA</span></a> <a href="https://mindly.social/tags/MyDisabledLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyDisabledLife</span></a> <a href="https://mindly.social/tags/DisabilityInclusion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityInclusion</span></a> <a href="https://mindly.social/tags/MySeveralWorlds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MySeveralWorlds</span></a> <a href="https://mindly.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fibromyalgia</span></a> <a href="https://mindly.social/tags/DisabilityAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DisabilityAwareness</span></a> <a href="https://mindly.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mindly.social/tags/InvisibleDisability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisability</span></a></p>
Carrie 🌏 My Several Worlds<p>Disabled people are almost always invisible. <br>We are very rarely ‘seen’ by able-bodied people.<br>Even in 2023, people still move past me like I’m not there. It hurts to know I am invisible to most people.</p><p><a href="https://mindly.social/tags/IDW" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>IDW</span></a> <a href="https://mindly.social/tags/InvisibleDisabilitiesWeek" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>InvisibleDisabilitiesWeek</span></a> <a href="https://mindly.social/tags/CareInMotion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CareInMotion</span></a><br><a href="https://mindly.social/tags/MySeveralWorlds" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MySeveralWorlds</span></a> <a href="https://mindly.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a></p>
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