https://www.europesays.com/uk/14508/ DHSC announces creation of £600m Health Data Research Service #DepartmentOfHealthAndSocialCare #DHSC #DrVinDiwakar #Health #HealthData #HealthDataResearchService #Healthcare #KeirStarmer #NHSData #NHSEngland #UK #UnitedKingdom #WellcomeTrust
#DTCgeneticTesting
#WhoCanYouTrust
#Bancruptcy
#Data #HealthData
In the article:
"On Friday, the Attorney General in 23andMe's home state of California issued a consumer alert advising customers to delete their data from the site given the company's "reported financial distress."
@asterisco why than did they Vote for the industry to get access to our health data WITHOUT our consent?
Parlament Vote of German Parties(German): https://www.piratomat.de/2024/04/eu-weiter-zugriff-auf-unsere-patientenakten-durch-behoerden-und-industrie-ohne-unsere-einwilligung
Context(English): https://www.patrick-breyer.de/en/pirates-call-for-a-halt-to-plans-for-the-eu-health-data-space-2
The #EHDS, which is now 'official', aims to unlock the potential of the safe and secure exchange, use and re-use of #HealthData in the EU. 
In IHI call 10, we have a topic on delivering frameworks, recommendations and other tools to support the implementation of the EHDS when it comes to the re-use of data for research purposes.
Find out more 
https://europa.eu/!c3xxWb
#IHITransformingHealth #HorizonEU
Great news from New Mexico, USA
"The Senate Bill would strengthen privacy protections for electronic patient records by requiring health care providers and other entities to segregate some patient health care information, including data related to reproductive and gender-affirming care. If passed, user access to the information would be limited to people or entities with written authorization from the patient."
Ireland needs private sector to lean in for European Health Data Space integration https://www.euractiv.com/section/health-consumers/news/ireland-needs-private-sector-to-lean-in-for-european-health-data-space-integration/?utm_source=dlvr.it&utm_medium=mastodon #EHDS #europeanhealthdataspace #healthdata #Ireland
RT by @EU_Health: #HaveYourSay by 28 Feb!
Our public consultation on the draft #EHDS implementation guidelines is still open.
This is an opportunity for you to help create a harmonised, secure and efficient approach to secondary #healthdata use in the EU.
Learn more: https://tehdas.eu/news/public-consultation-opens-on-guidelines-for-harmonising-health-data-use-across-europe/
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https://nitter.privacydev.net/tehdas/status/1889603580409135136#m
RT by @EU_Health: Substantial discussions in the Hague with 
Minister of Health, Welfare and Sport @FleurAgemaPVV on shared priorities. input on #PharmaReform, #CriticalMedicines & #HealthData is crucial for progress of #EUHealth files. Looking forward to continued cooperation.
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https://nitter.privacydev.net/OliverVarhelyi/status/1889753866222072054#m
[en] DOGE "God-mode situation" in US federal agencies
"That sounds like our worst fears come true"
"At least one #DOGE ally appears to be working to open back doors into systems used throughout the federal #government."
"... they’d have bank-account ... for every single person ..."
"There’s reason to believe that #health information may be next"
https://www.theatlantic.com/technology/archive/2025/02/doge-god-mode-access/681719/
#cybersecurity #healthcaresecurity #cdc #healthdata #privacy #godmode #backdoor #theatlantic #atlantic @infosec @privacy
What is IHI doing to help the European Health Data Space #EHDS become a reality? 
Our projects are smoothing the way towards the speedy & efficient flow of #HealthData to help find better therapies faster & treat patients quicker. Read more: europa.eu/!Xf4hJj
#IHITransformingHealth #HorizonEU
"
2025 Update: 72% of app users vaccinated after accessing education rewards. 
Vaccination Rewards bridges health and learning with 200+ incentives. https://vaccinationrewards.org/
#VaccinateForEducation #HealthData #PublicHealth #VaccineIncentives #HealthTech #EducationAccess #CommunityHealth #VaccineProgress #NonprofitTech #VaccineHesitancy #ImmunizationMatters #HealthyFuture #VaccineRewards #IncentivizeHealth #BrightMindEnrichment #VaccinationRewards #AmericanHealth #HealthSolutions"
Do you have ideas on how to make the #EHDS a reality for the re-use of #HealthData for #Research? Apply for our IHI call 10 topic on the subject!
Details: https://europa.eu/!c3xxWb
#IHITransformingHealth #HorizonEU
https://www.cbc.ca/news/politics/canada-us-medical-environmental-data-1.7457627
"Rasmussen is just one of several Canadian residents who have joined what has become an international guerilla archiving effort to preserve copies of U.S. government web pages and data being rapidly taken offline by U.S. President Donald Trump's administration."
This actually showed up 3 days ago I just forgot to post it. Flu and Covid levels are going up, so mask up!
#Covid19 #Infuenza #HealthData
https://substackcdn.com/image/fetch/f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F453a12c2-e458-417a-b21e-95aea43b95d7_1600x1600.png?utm_source=substack&utm_medium=email
The horizons of what is possible with #healthdata continues to expand every day, but what does this mean for #datasecurity and #privacy?
Get insight into solutions with this event from Danish Life Science Cluster and NCC-DK, Danmarks Nationale Koordinationscenter for Cybersikkerhed
Jennifer Bartell, of the National Health Data Science Sandbox and Center for Health Data Science (#HeaDS), will be there sharing her perspective.
5 March
Aarhus
Register: https://www.danishlifesciencecluster.dk/arrangementer/cybersikkerhed-i-sundhedssektoren/
Scientist calls the disappearance of federal health data a 'digital book burning' https://www.npr.org/2025/02/05/nx-s1-5286577/researcher-calls-out-trump-administration-for-a-digital-book-burning #publichealth #healthdata
6/ Beyond articles, the CDC has already begun removing or altering health data on its website, including statistics on HIV and youth risk behavior. Experts fear this could distort public health efforts and hinder the ability to track diseases within key demographics. #HealthData #PublicHealthCrisis
A Look at Federal Health Data Taken Offline
https://www.kff.org/policy-watch/a-look-at-federal-health-data-taken-offline/
“You look at their #healthdata tomorrow!”
“I'll tell them something about #Gaza and #Ukraine or something.”
RE: https://bsky.app/profile/did:plc:eibxuwyi32fkqfxtb7ev4gpo/post/3lhfthh5qlk2n
