Waking up with #ChronicPain every morning: #CPP
Don't cry. Don't cry. Don't cry.
Don't cry. Don't cry. Don't cry.
Don't cry. Don't cry. Don't cry.
Don't cry. Don't cry. Don't cry.
#axSpA #fibromyalgia #MyDisabledLife #IWD #InvisibleDisabilitiesWeek
#CareInMotion #MECFS #PsA

Today is the start of #InvisibleDisabilitiesWeek aka #IWD!

"I need to be vocal about my disability because I don't look sick. You will never see me on days I do look sick because those are the days I don't leave my bed." Carrie, MySeveralWorlds.com

Save the Dates - May 5-6 - Annual 2023 Global #Spondyloarthritis Summit hosted by Spondylitis Association of America.

I'm pleased to say I'm covering this event again for the SAA.

#SpA topics:
Flares & Possible Triggers
SpA Research Updates
Sleep Issues
Women & SpA
Diet & Nutrition
Surgery & Joint Replacement Recommendations
Cardiovascular Disease
+ more

Register today:
https://spondylitis.org/.../saas-5th-annual-global.../

Gearing up for April and some HUGE announcements.

I might be a legit world-class weakling because of disabling arthritis, but I promise I am one of the toughest chicks you'll ever know!

#LifeWithPain #ItsNotJustArthritis
#ChronicIllness #ChronicPain
#axSpA #Spoonie #SickSelfie
#Spondyloarthritis #MyChronicLife #AnkylosingSpondylitis #StillSick
#Fibromyalgia #MECFS
#InvisibleIllness #disability
#ButYouDontLookSick #arthritis #DisabilityAwareness #ChronicallyFabulous

Novel therapies in axial spondyloarthritis - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S1521694222000705 #axspa #pharma

My petition for med coverage: DENIED AGAIN.
Taiwan supports keeping pts disabled instead of helping w. access to meds for #axSpA & #AnkylosingSpondylitis.

15 years of disabling medical history doesn't count! My story is on MySeveralWorlds.com.
I'll leave it here: My knees in 2022

Arthritis affects 1 in 5
60% of arthritis patients are 18-64
Arthritis steals your life. I lost mine at age 34. I'm 48.
Arthritis is the #1 cause of disability

#ButYouDontLookSick
#MedMastodon #RheumMastodon

Consider this my official introduction to Mastodon and #DisabledSocial. I wanted to share my thread (previously written on bird-app).

Well, it finally happened. The reversal of Roe v. Wade has put me in an unspeakable conundrum.

United Healthcare has denied my claim to start Avsola after failing Cimzia after two years of treatment for #axSpA / #axPsA. Why?

I haven't tried methotrexate.

Key sites of spinal inflammation in MRi in #axial #spondylitis #AxSPA #RheumTwitter

What lesions to look for in a MRi of the sacroiliac joints when suspecting #sacroiliitis? #RheumTwitter #rheum #AxSPA

“Being more honest and realistic about my limitations with #ChronicIllness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” ~Carrie

Read: Learning To Love Your Chronically Ill Body
https://www.myseveralworlds.com/2019/10/12/learning-to-love-your-chronically-ill-body/

Good morning from Taiwan. I did too much activity on Fri and Sat so today is a full rest day which my cats supervise. They are very good supervisors at ensuring I rest. Too bad they can't fetch coffee.

Alt text includes their names. But Bijoux is the striped one and her name means 'jewel or highly prized' and Dany the black cat (Daenarys) is a GoT kitty who lives up to her name. These babes saved my life when I was fully bedridden.

Had a little stroll today with my @neowalksticks Gatsby. 'She so purty and dependable!'

Walking *sometimes* sorts my #axSpA pain out, but it also aggravates my #Fibromyalgia and #MECFS so it's always a fine line. I kept it short and I'm hoping it helps, not hinders.

#MedMastodon #DisabilityMastodon
#ChronicIllness #ChronicPain #NEISvoid
#Spoonie #AnkylosingSpondylitis
#InvisibleIllness #ThisIsFibro 
#ButYouDontLookSick #disability
#arthritis #SelfCare #MyChronicLife #SickSelfie

It’s time to discuss mediation analysis #axspa #ACR22 https://t.co/HWqOfblmdF