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#ableism

26 posts18 participants0 posts today

I recently had a physician try to ‘not all doctors!’ me in response to a post I made about masking in healthcare.

They informed me that disabled people NEED doctors to fight fascism, combat vaccine misinformation and provide healthcare, so it’s wrong to call them out or ‘attack’ them.

First things first, I don’t attack doctors. I call out systemic issues within the healthcare system.

It took me years to be brave enough to speak out about my medical trauma. I was scared of retaliation.

The main reason I began speaking out? I recognize that I have significant privilege that isn’t afforded to everyone. By virtue of being cishet and white in a country with Universal healthcare, I have less difficulties engaging with the medical system compared to others.

Yet I’ve still suffered horrendous abuse. Preventable infections. Gaslighting. Delays in diagnosis. Misdiagnosis. Trauma.

The culture doesn’t change because we are bullied into silence. We are trained to take whatever we can get with a smile, and shut up about the rest.

I’m not being silent anymore.

I find a doctor demanding my silence in exchange for help fighting fascism or providing healthcare to be morally repugnant.

You can’t ‘not all doctors’ an issue like this. Patients are being harmed. They’re being disabled. Many have been killed.

We shouldn’t be coerced into silence just because we NEED medical care. That’s simply compounding the trauma.

I will keep speaking out. For those who can’t, for those who are no longer with us, for whose who come after me.

#ableism

"I like being deaf. I like the silence as well as the rich culture and language deafness affords me. When I see the word ‘deaf’ on the page, it evokes a feeling of pride for my community, and calls to me as if I’m being addressed directly, as if it were my name.

So, it always stings when I’m reminded that for many, the word ‘deaf’ has little to do with what I love most – in fact, its connotations are almost exclusively negative. For example, in headlines across the world – Nevada’s proposed gun safety laws, pleas from Ontario’s elderly and weather safety warnings in Queensland – have all 'fallen on deaf ears.

This kind of ‘ableist’ language is omnipresent in conversation: making a 'dumb' choice, turning a 'blind eye' to a problem, acting 'crazy', calling a boss 'psychopathic', having a 'bipolar' day. And, for the most part, people who utter these phrases aren’t intending to hurt anyone – more commonly, they don’t have any idea they’re engaging in anything hurtful at all."

However, for disabled people like me, these common words can be micro-assaults. For instance, 'falling on deaf ears' provides evidence that most people associate deafness with willful ignorance (even if they consciously may not). But much more than individual slights, expressions like these can do real, lasting harm to the people whom these words and phrases undermine – and even the people who use them in daily conversation, too.

Not a small problem

About 1 billion people worldwide – 15% of the global population – have some type of documented disability. In the US, this proportion is even larger, at about one in four people, with similar rates reported in the UK.

Despite these numbers, disabled people experience widespread discrimination at nearly every level of society. This phenomenon, known as 'ableism' – discrimination based on disability – can take on various forms. Personal ableism might look like name-calling, or committing violence against a disabled person, while systemic ableism refers to the inequity disabled people experience as a result of laws and policy."

bbc.com/worklife/article/20210

BBC · The harmful ableist language you unknowingly useBy Sara Nović

I’ve lost count of how many times I was dismissed with very serious issues because I was ‘too young’ and/or a woman.

My Dysautonomia was missed for years because ‘you’re too young for heart problems’

My EDS wasn’t diagnosed until my late thirties because ‘you’re young and otherwise healthy so the pain is in your head’

After my hysterectomy, I bled into my belly for two weeks while the ER repeatedly sent me home saying I was ‘too young’ to be having a serious post operative complication.

Misogyny, discrimination and bias in medicine kills. It disables. It traumatizes.

I was lucky to survive my experiences, but I don’t want any of us to survive based on luck.

We deserve the same level of care as men, and I will keep fighting until we get it.

ctvnews.ca/health/article/mont

Valerie Buchanan, Chris Scheepers and their son in Old Orchard Beach, Maine in July 2024.
CTVNews · Montreal woman dies at 32 after being told she was ‘too young for breast cancer’A Montreal woman who was told by health-care professionals that she was too young for breast cancer but later diagnosed with it, has died from the disease. Valerie Buchanan was 32 when she died at the end of February.

Internalized #ableism is a helluva drug. Innkeeper has both legs wrapped in Ace bandages and is hobbling around, but made a point of asking "Are you sick?" in a passive aggressive way when I was checking in. No greeting, no welcome, just immediate challenge on me wearing a mask.

I responded that I cannot afford to get sick and the mask doesn't bother me so I wear it. And he kept it up, "We don't have respiratory diseases around here". "Just wash your hands, keep clean..." etc. #CovidIsNotOver

This is also by fear that you abort diagnosis and push people to ill-being and suicide.

Autism evaluations are being canceled over fears about a national registry statnews.com/2025/05/01/autism

> “Did we just screw up our child’s life? In seeking to help him, did I just paint a giant target on his back?”

Fight the state. Fight the corporations. Fight the ableism. Learn about neurodiversity.

STAT · Autism evaluations are being canceled over fears about a national registryFears of landing on a federal list prompts parents, and adults, to cancel autism screening evaluations.

I wanted to share on this from pat.radical.therapist on insta (search for that user name and interact directly with them on insta or substack if you can). All the below is typed up from her image posts.

>> Nervous System Care Under Fascism: Concrete Practices for Colonized + Overwhelmed Bodies

Please note: This lens is coming from my background in Somatic Experiencing + informed by polyvagal lens.

Yes this can also be the experience of those with childhood trauma, abuse, neglect.

We can experience childhood wounding with the impacts of colonialism, white supremacy, patriarchy, etc. They are not mutually exclusive.

Proceed with care.

Your nervous system isn't broken.

It's responding, appropriately, intelligently - to fascism.

The anxiety. The collapse. The hypervigilance. The rage that simmers beneath your skin.

These aren't individual malfunctions.

They are biological responses to political conditions; to the daily grinding terror of living under authoritarian rule, state surveillance, racialized violence, ecological collapse, and carceral control.

Under fascism, safety is not a baseline - it's a threat.

Regulation is not neutral; it's a privilege of the protected.

Through a polyvagal lens it teaches us that our autonomic nervous systems scan for cues of safety and danger through neuroception.

But what happens when every institution; school, clinic, welfare office, police station - is a threat?

What happens when the state is the danger?

Your body knows.
It remembers.
For colonized peoples, the nervous sytem has never known safety within the state.
The parasympathic collpase of dispair and shutdown is not new.
The sympathetic flood of fight, flight, or freeze is ancestral.
These are not symptoms of dysfunction - they are symptoms of domination.

Let's be clear: colonization was; and remains a full body assault.

Fanon reminds of us.

These weren't metaphors. They were diagnoses of colonial trauma; long before the DSM pathologized them into disorders.

Fascism doesn't only target ideologies. It targets bodies.

Black, brown, trans, disabled, immigrant, poor - the fascist state seeks to regulate, restrain, and erase the bodies it cannot control.

And yet, most "nervous system care" practices are rooted in colonial wellness industries.

They offer regulation stripped of resistance. They preach breathwork while ignoring the chokehold.

They offer mindfulness while ICE raids homes. They offer somatic safety without naming the system that made the body unsafe in the first place.

This is why a decolonial nervous system lens matters.

Because our regulation cannot come at the cost of dissociation.
Because our healing must include rage, grief, collapse and resistance.

> Care Practices That Resist Fascism (Without Gaslighting Your Body:

Track Your Baseline - Without Judgement
- Your body isn't "overreacting." It's responding.

Start noticing: Am I in fight (irritated, controlling)? Flight (racing, escaping into work)? Freeze (numb, hopeless)? Fawn (people-pleasing, appeasing authority)?

Practice:
- Put a sticky note somewhere private: "This is a response. I get to choose how I relate to it."
- Build a "what helps me come back" list: 3 things for fight, flight, freeze, fawn. Reference when flooded.

> Co-Regulate Outside of Respectability

You don't need to be "calm" to be cared for.

You don't need to be articulate, soft-spoken, or politically on-point.

Practice:
- Find a co-regulation buddy. No fixing. Just breathing together. Eye contact. Mutual presence.
- During conflict, ask: "Can we pause for a nervous system check?" instead of forcing resolution.
- Let someone see you cry - not in shame, but in truth.

> Name the System. Refuse the Shame.

You are not disordered. You are not too sensitive.

Your nervous system is remembering what the state demands you forget: that you are human, and this world is inhumane.

Practice:
- Speak the truth aloud: "This isn't all mine. This is systemic. This is historical. This is survival."
- Use collective language: "We are responding. We are resisting. We are remembering."

Replied in thread

@ned I don’t even know how people can say this after 2020.

Here in the US people who couldn’t go to work because of Covid mitigations were getting 60% of their income (except states have a max, so maybe not if they’re HIGH earners) PLUS an extra $600 a week. So some of these people were making more money by not going to work, which I think is fantastic.

The part that blew my mind was that they were mad about it. Or maybe they were just screaming about it on social media so people wouldn’t get mad at them for forgetting extra money? It was the weirdest thing

Even when people were getting more money and unemployment than at work, and getting pandemic food stamps, and they had rental assistance available to them if they needed it, and they could have paid sick days if they were sick, some of these weirdos were still screaming about not being able to work.

So yeah, you can’t tell me that people would choose not to work.

This was my favorite tweet of 2020:

"Eugenics isn't just about eradicating the lesser people like myself, like people with disabilities, it's about attaching disability to marginalized communities in order to slate them for eradication."

Fantastic crash course in eugenics, ableism & anti blackness by the indomitable Imani Barbarin.

RFK Jr sits down with Dr Phil and tells parents to “do their own research” when it comes to vaccines.

He ignores the fact that most people aren’t trained or equipped to do proper research.

The internet is full of AI slop.

“Research” for many parents is Facebook memes & misinformation.

The US is experiencing their worst measles outbreak in decades. Three people have died. The message needs to be clear & simple.

The MMR vaccine is safe and effective. It saves lives. Vaccinate your kids.

There’s a ton of overlap between the Covid Cautious & Chronic Illness communities because people living with chronic illness don’t have the luxury of ignoring the pandemic.

They know what a Covid infection will do to their precarious health.

so when the rest of the world decided to bury their heads in the sand and rush ‘back to normal’, we got left behind.
Stuck bearing the burden of knowing that the pandemic isn’t over.

That every day people are dying or becoming disabled.

That each Covid infection is playing Russian Roulette with disability and eventually, your number will be up.

There’s a significant mental toll that occurs when you are living in a different reality than the rest of the world.

People think we’re isolated and lonely because we’re often housebound and unable to do the activities we used to do, but they never consider the loneliness that comes from refusing to live in denial.

From knowing the danger everyone is in and being powerless to stop it.

All of these factors make maintaining a baseline all the more important, but it’s a delicate balance. Every thing we do is a cost/benefit analysis. We have to consider how much energy it will take. Do we have enough time to recover afterward? Is there a more disability friendly alternative?

The executive functioning required to make these decisions is considerable, and ironically also has a negative impact on our baseline. It’s exhausting having to be on high alert all the time. Unfortunately the alternative, throwing caution to the wind, is far more dangerous to our health.

disabledginger.com/p/maintaini

www.disabledginger.comMaintaining a Baseline Means Everything When You're Chronically IllSo why is it so hard to do? And how can we make it a bit easier?