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@danamlewis@med-mastodon.comIt’s been interesting talking to people w/exocrine pancreatic insufficiency (EPI/PEI/PI) about what it takes to get updated pancreatic #enzyme replacement therapy (#PERT) prescriptions.
Surprising amount of variance among #healthcare providers, even with #guidelines.
Here’s a guide I wrote for other people with EPI - what would you add to it?
DIYPS.orgHow To Talk To Your Doctor About Your Enzyme (PERT) Dosing If You Have Exocrine Pancreatic Insufficiency (EPI or PEI or PI)In exocrine pancreatic insufficiency (EPI/PEI/PI), people are responsible for self-dosing their medication every time they eat something. Doctors prescribe a starting dose, but a person with EPI determines each and every time they eat or drink something how many enzyme pills (of pancreatic enzyme replacement therapy, known as PERT) to take. Doctors often prescribe a…