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If anyone here is interested in #narcolepsy, #cataplexy, #sleep, #IdiopathicHypersomnia,
#pediatric medicine, please let me know. Would love to connect. Thanks.
@Mitdoc Hello Dr Patterson, I am Ming. I have narcolepsy. I have a zine about my narcolepsy: “With Intention”
@Mitdoc forgot to mention I am also a retired RN.
@Mitdoc Hi Dr Patterson! I'd love to connect! I am a cognitive neuroscientist with narcolepsy
@Mitdoc hello I have idiopathic hypersomnia
@Mitdoc I have idiopathic hypersomnia. Thanks for posting!
@ainebet That can be a difficult diagnosis, with few approved treatment options. Are you familiar with the #Hypersomnia Foundation? They are a great resource and hold an annual meeting on June.
https://www.hypersomniafoundation.org/
@Mitdoc I am! They are so helpful!! I was diagnosed in 2014 and it's definitely not been easy, but at least for the moment I have a pretty good routine going! Can't wait for the stimulant shortage to be over though! 